How Do We Talk With People Living With Dementia About Future Care: A Scoping Review.

Visser, M; Smaling, HJA; Parker, D; van der Steen, JT

How Do We Talk With People Living With Dementia About Future Care: A Scoping Review.

Visser, M

Smaling, HJA Parker, D

van der Steen, JT

Permalink

Publisher:: Frontiers Media
Publication Type:: Journal Article
Citation:: Frontiers in Psychology, 2022, 13, pp. 1-10
Issue Date:: 2022

Open Access

Copyright Clearance Process

Recently Added
In Progress
Open Access

This item is open access.

Adobe PDF

Download How Do We Talk With People Living With Dementia About Future Care A Scoping Review.pdfAdobe PDF (622.83 kB)

View on publisher's site

View statistics

Full metadata record

Field	Value	Language
dc.contributor.author	Visser, M https://orcid.org/0000-0001-6796-6246
dc.contributor.author	Smaling, HJA
dc.contributor.author	Parker, D https://orcid.org/0000-0003-2552-8613
dc.contributor.author	van der Steen, JT
dc.date.accessioned	2022-10-12T05:22:05Z
dc.date.available	2022-03-16
dc.date.available	2022-10-12T05:22:05Z
dc.date.issued	2022
dc.identifier.citation	Frontiers in Psychology, 2022, 13, pp. 1-10
dc.identifier.issn	1664-1078
dc.identifier.issn	1664-1078
dc.identifier.uri	http://hdl.handle.net/10453/162526
dc.description.abstract	A diagnosis of dementia often comes with difficulties in understanding a conversational context and expressing how one feels. So far, research on how to facilitate advance care planning (ACP) for people with dementia focused on defining relevant themes and topics for conversations, or on how to formalize decisions made by surrogate decision makers, e.g., family members. The aim of this review is to provide a better scope of the existing research on practical communication aspects related to dementia in ACP conversations. In November 2020, seven databases were searched to select papers for inclusion (Proquest, Medline, Embase, Scopus, Psycinfo, Amed, and Cinahl). This search was updated in December 2021. The search strategy consisted of three tiers (related terms to "dementia," "communication" and "ACP"), intersected by using the Boolean term "AND," and resulted in 787 studies. Two researchers followed explicit criteria for two sequential levels of screening, based on titles and abstracts and full papers. A total of 22 studies were included for data analysis. Seven topics (i.e., importance of having ACP conversations, knowledge gap, inclusion of people with dementia in ACP conversations, policy vs. practice, adapting to cognitive changes, adapting to psychosocial changes, and adapting to emotional changes) emerged clustered around two themes (i.e., communicating with people with dementia in ACP, and changes in communication due to dementia). This scoping review provides practical suggestions for healthcare professionals to improve ACP communication and uncovered gaps in research on communication aspects related to dementia in ACP conversations, such as non-verbal behavior, timing and implementation, and personal preferences.
dc.format	Electronic-eCollection
dc.language	eng
dc.publisher	Frontiers Media
dc.relation.ispartof	Frontiers in Psychology
dc.relation.isbasedon	10.3389/fpsyg.2022.849100
dc.rights	info:eu-repo/semantics/openAccess
dc.subject	1701 Psychology, 1702 Cognitive Sciences
dc.title	How Do We Talk With People Living With Dementia About Future Care: A Scoping Review.
dc.type	Journal Article
utslib.citation.volume	13
utslib.location.activity	Switzerland
utslib.for	1701 Psychology
utslib.for	1702 Cognitive Sciences
pubs.organisational-group	/University of Technology Sydney
pubs.organisational-group	/University of Technology Sydney/Faculty of Health
pubs.organisational-group	/University of Technology Sydney/Strength - CHT - Health Technologies
pubs.organisational-group	/University of Technology Sydney/Centre for Health Technologies (CHT)
utslib.copyright.status	open_access	*
pubs.consider-herdc	false
dc.date.updated	2022-10-12T05:22:03Z
pubs.publication-status	Published
pubs.volume	13

Abstract:

A diagnosis of dementia often comes with difficulties in understanding a conversational context and expressing how one feels. So far, research on how to facilitate advance care planning (ACP) for people with dementia focused on defining relevant themes and topics for conversations, or on how to formalize decisions made by surrogate decision makers, e.g., family members. The aim of this review is to provide a better scope of the existing research on practical communication aspects related to dementia in ACP conversations. In November 2020, seven databases were searched to select papers for inclusion (Proquest, Medline, Embase, Scopus, Psycinfo, Amed, and Cinahl). This search was updated in December 2021. The search strategy consisted of three tiers (related terms to "dementia," "communication" and "ACP"), intersected by using the Boolean term "AND," and resulted in 787 studies. Two researchers followed explicit criteria for two sequential levels of screening, based on titles and abstracts and full papers. A total of 22 studies were included for data analysis. Seven topics (i.e., importance of having ACP conversations, knowledge gap, inclusion of people with dementia in ACP conversations, policy vs. practice, adapting to cognitive changes, adapting to psychosocial changes, and adapting to emotional changes) emerged clustered around two themes (i.e., communicating with people with dementia in ACP, and changes in communication due to dementia). This scoping review provides practical suggestions for healthcare professionals to improve ACP communication and uncovered gaps in research on communication aspects related to dementia in ACP conversations, such as non-verbal behavior, timing and implementation, and personal preferences.

Please use this identifier to cite or link to this item:

http://hdl.handle.net/10453/162526