Bereaved caregivers’ satisfaction with end-of-life care

Frame, A; Grant, JB; Layard, E; Scholz, B; Law, E; Ranse, K; Mitchell, I; Chapman, M

Bereaved caregivers’ satisfaction with end-of-life care

Frame, A Grant, JB Layard, E Scholz, B Law, E Ranse, K Mitchell, I Chapman, M

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Publisher:: Taylor and Francis Group
Publication Type:: Journal Article
Citation:: Progress in Palliative Care, 2022, 30, (4), pp. 212-220
Issue Date:: 2022-01-01

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Field	Value	Language
dc.contributor.author	Frame, A
dc.contributor.author	Grant, JB
dc.contributor.author	Layard, E
dc.contributor.author	Scholz, B
dc.contributor.author	Law, E
dc.contributor.author	Ranse, K
dc.contributor.author	Mitchell, I
dc.contributor.author	Chapman, M https://orcid.org/0000-0003-1333-3448
dc.date.accessioned	2022-10-26T04:15:31Z
dc.date.available	2022-10-26T04:15:31Z
dc.date.issued	2022-01-01
dc.identifier.citation	Progress in Palliative Care, 2022, 30, (4), pp. 212-220
dc.identifier.issn	0969-9260
dc.identifier.issn	1743-291X
dc.identifier.uri	http://hdl.handle.net/10453/162717
dc.description.abstract	End-of-life care involves treatment and support offered to terminally ill individuals and their caregivers. Effective communication and decision-making, illness and symptom management, relationship with doctors, characteristics of the health care team, and the involvement and needs of caregivers have all been proposed to contribute to the quality of the end-of-life experience. This study sought to establish bereaved caregivers’ experiences of the quality of the elements of end-of-life care delivered to their loved ones. Bereaved caregivers who had lost a loved one who was cared for in an acute care University-affiliated hospital, with 670 beds, located in the Australian Capital Territory during the previous 6−12 months (N=91), were surveyed using a modified version of the Canadian Health Care Evaluation Project questionnaire. The findings indicated that the bereaved caregivers were generally very satisfied with their loved one’s end-of-life care. The age of the caregiver, the preferred location of death for both patient and caregiver, if death was expected, and religious affiliation were associated with satisfaction of the end-of-life care delivered. Key areas for improvement of end-of-life care included factors related to the relationships between doctors and those receiving care, characteristics of the health care team, illness management, communication and decision-making, and the involvement of caregivers. These findings have significant implications for this hospital and those seeking to improve outcomes in end-of-life care settings more widely, by providing baseline data on caregiver-evaluated care quality and identifying high-priority areas for targeted intervention.
dc.language	en
dc.publisher	Taylor and Francis Group
dc.relation.ispartof	Progress in Palliative Care
dc.relation.isbasedon	10.1080/09699260.2021.2005756
dc.rights	info:eu-repo/semantics/closedAccess
dc.subject	1110 Nursing, 1117 Public Health and Health Services
dc.subject.classification	Gerontology
dc.title	Bereaved caregivers’ satisfaction with end-of-life care
dc.type	Journal Article
utslib.citation.volume	30
utslib.for	1110 Nursing
utslib.for	1117 Public Health and Health Services
pubs.organisational-group	/University of Technology Sydney
pubs.organisational-group	/University of Technology Sydney/Faculty of Health
utslib.copyright.status	closed_access	*
pubs.consider-herdc	false
dc.date.updated	2022-10-26T04:15:30Z
pubs.issue	4
pubs.publication-status	Published
pubs.volume	30
utslib.citation.issue	4

Abstract:

End-of-life care involves treatment and support offered to terminally ill individuals and their caregivers. Effective communication and decision-making, illness and symptom management, relationship with doctors, characteristics of the health care team, and the involvement and needs of caregivers have all been proposed to contribute to the quality of the end-of-life experience. This study sought to establish bereaved caregivers’ experiences of the quality of the elements of end-of-life care delivered to their loved ones. Bereaved caregivers who had lost a loved one who was cared for in an acute care University-affiliated hospital, with 670 beds, located in the Australian Capital Territory during the previous 6−12 months (N=91), were surveyed using a modified version of the Canadian Health Care Evaluation Project questionnaire. The findings indicated that the bereaved caregivers were generally very satisfied with their loved one’s end-of-life care. The age of the caregiver, the preferred location of death for both patient and caregiver, if death was expected, and religious affiliation were associated with satisfaction of the end-of-life care delivered. Key areas for improvement of end-of-life care included factors related to the relationships between doctors and those receiving care, characteristics of the health care team, illness management, communication and decision-making, and the involvement of caregivers. These findings have significant implications for this hospital and those seeking to improve outcomes in end-of-life care settings more widely, by providing baseline data on caregiver-evaluated care quality and identifying high-priority areas for targeted intervention.

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http://hdl.handle.net/10453/162717