Caregiver or care receiver: Adolescents' experience of caregiving to a parent with severe mental illness: A qualitative study

Rahmani, F; Roshanghar, F; Gholizadeh, L; Dickens, GL

Caregiver or care receiver: Adolescents' experience of caregiving to a parent with severe mental illness: A qualitative study

Rahmani, F Roshanghar, F Gholizadeh, L

Dickens, GL

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Publisher:: WILEY
Publication Type:: Journal Article
Citation:: Child and Family Social Work, 2022, 27, (4), pp. 795-804
Issue Date:: 2022-01-01

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Field	Value	Language
dc.contributor.author	Rahmani, F
dc.contributor.author	Roshanghar, F
dc.contributor.author	Gholizadeh, L https://orcid.org/0000-0002-6711-3312
dc.contributor.author	Dickens, GL
dc.date.accessioned	2022-11-29T05:13:28Z
dc.date.available	2022-11-29T05:13:28Z
dc.date.issued	2022-01-01
dc.identifier.citation	Child and Family Social Work, 2022, 27, (4), pp. 795-804
dc.identifier.issn	1356-7500
dc.identifier.issn	1365-2206
dc.identifier.uri	http://hdl.handle.net/10453/163819
dc.description.abstract	Exploring the experiences of adolescent caregivers of mentally ill parents is essential to understand their challenges and identify their care needs. Using a qualitative research design, 18 caregiving adolescents shared their experiences of living with and providing care to a parent with a severe mental illness. The analysis of the interviews resulted in the emergence of three main categories: (1) emotional exhaustion with associated subthemes of ‘ongoing worries’, ‘fear of loneliness’, ‘feeling of shame and guilt’ and ‘fear of discrimination and stigma’; (2) being trapped in a difficult situation with subthemes of ‘living a compromised life’, ‘alienating from peers’ and ‘caregiver rather than care receiver; and (3) adapting to the situation with subthemes of developing new skills and growing accountability. The study findings suggest that adolescent caregivers of parents with severe mental illness experience significant challenges and psychological distress associated with their caregiving role. They need to be supported by health care providers to develop strategies to adjust to their situation and maintain health and well-being.
dc.language	English
dc.publisher	WILEY
dc.relation.ispartof	Child and Family Social Work
dc.relation.isbasedon	10.1111/cfs.12926
dc.rights	info:eu-repo/semantics/embargoedAccess
dc.subject	1607 Social Work, 1701 Psychology, 1801 Law
dc.subject.classification	Social Work
dc.title	Caregiver or care receiver: Adolescents' experience of caregiving to a parent with severe mental illness: A qualitative study
dc.type	Journal Article
utslib.citation.volume	27
utslib.for	1607 Social Work
utslib.for	1701 Psychology
utslib.for	1801 Law
pubs.organisational-group	/University of Technology Sydney
pubs.organisational-group	/University of Technology Sydney/Faculty of Health
pubs.organisational-group	/University of Technology Sydney/Strength - CHSP - Health Services and Practice
utslib.copyright.status	open_access	*
utslib.copyright.embargo	2024-01-01T00:00:00+1000Z
dc.date.updated	2022-11-29T05:13:27Z
pubs.issue	4
pubs.publication-status	Published
pubs.volume	27
utslib.citation.issue	4

Abstract:

Exploring the experiences of adolescent caregivers of mentally ill parents is essential to understand their challenges and identify their care needs. Using a qualitative research design, 18 caregiving adolescents shared their experiences of living with and providing care to a parent with a severe mental illness. The analysis of the interviews resulted in the emergence of three main categories: (1) emotional exhaustion with associated subthemes of ‘ongoing worries’, ‘fear of loneliness’, ‘feeling of shame and guilt’ and ‘fear of discrimination and stigma’; (2) being trapped in a difficult situation with subthemes of ‘living a compromised life’, ‘alienating from peers’ and ‘caregiver rather than care receiver; and (3) adapting to the situation with subthemes of developing new skills and growing accountability. The study findings suggest that adolescent caregivers of parents with severe mental illness experience significant challenges and psychological distress associated with their caregiving role. They need to be supported by health care providers to develop strategies to adjust to their situation and maintain health and well-being.

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http://hdl.handle.net/10453/163819