153 Caregiving burden and resilience: a mixed methods analysis in dyads managing a VAD in the home

Peeler, A; Saylor, MA; Choy, L; DeGroot, L; Pavlovic, N; Davidson, P; Bidwell, JT

153 Caregiving burden and resilience: a mixed methods analysis in dyads managing a VAD in the home

Peeler, A Saylor, MA Choy, L DeGroot, L Pavlovic, N Davidson, P

Bidwell, JT

Permalink

Publisher:: Cambridge University Press (CUP)
Publication Type:: Journal Article
Citation:: Journal of Clinical and Translational Science, 2022, 6, (s1), pp. 15-15
Issue Date:: 2022-04

Closed Access

	Filename	Description	Size
	153-caregiving-burden-and-resilience-a-mixed-methods-analysis-in-dyads-managing-a-vad-in-the-home.pdf	Published version	49.67 kB	Adobe PDF	View/Open

Copyright Clearance Process

Recently Added
In Progress
Closed Access

This item is closed access and not available.

Full metadata record

Field	Value	Language
dc.contributor.author	Peeler, A
dc.contributor.author	Saylor, MA
dc.contributor.author	Choy, L
dc.contributor.author	DeGroot, L
dc.contributor.author	Pavlovic, N
dc.contributor.author	Davidson, P https://orcid.org/0000-0003-2050-1534
dc.contributor.author	Bidwell, JT
dc.date.accessioned	2023-02-02T02:47:01Z
dc.date.available	2023-02-02T02:47:01Z
dc.date.issued	2022-04
dc.identifier.citation	Journal of Clinical and Translational Science, 2022, 6, (s1), pp. 15-15
dc.identifier.issn	2059-8661
dc.identifier.issn	2059-8661
dc.identifier.uri	http://hdl.handle.net/10453/165838
dc.description.abstract	<jats:p>OBJECTIVES/GOALS: Caregivers of patients with ventricular assist devices (VAD) are invaluable contributors to patient health, but they may experience psychological symptoms or worsening quality of life related to caregiving. We aimed to explore VAD caregiving burden and resilience comparing high and low burden patient-caregiver dyads. METHODS/STUDY POPULATION: Using a convergent mixed-methods design, we conducted semi-structured interviews and collected self-reported surveys from patient-caregiver dyads. Patients (n=10, mean age 55.8 years) were mostly white males implanted as destination therapy. Caregivers (n=10, mean age 52.6) were mostly white females. Most dyads were spousal (n=6). Caregiver burden was measured with the Zarit Burden Interview Scale, using the median score to categorize lower and higher burden dyads (median = 12, IQR = 8). Data were analyzed using deductive and inductive coding for thematic analysis. RESULTS/ANTICIPATED RESULTS: Lower and higher burden dyads described the shared burden experience of 1) hyper-vigilance and uncertainty immediately post-implant and 2) changing relationship roles. Lower burden dyads were more likely to able to take on responsibilities outside of caregiving. Contextual differences among higher burden dyads included higher financial strain, less social support, worse quality of life (both patients and caregivers) and worse heart failure severity compared to lower burden dyads. All dyads were resilient, using coping strategies like cognitive reframing, positivity, and adaptation to new roles. Higher burden dyads were more vulnerable to coping fatigue and were more likely to express that the VAD had irreversibly changed their life. DISCUSSION/SIGNIFICANCE: VAD caregiver-patient dyads differ in their levels of caregiver burden. Burden experiences and resilience mechanisms may inform future interventions to reduce caregiver burden in diverse VAD dyads. Knowledge of the caregiver experience and factors contributing to burden can inform the healthcare team in providing essential caregiver support.</jats:p>
dc.language	en
dc.publisher	Cambridge University Press (CUP)
dc.relation.ispartof	Journal of Clinical and Translational Science
dc.relation.isbasedon	10.1017/cts.2022.62
dc.rights	info:eu-repo/semantics/closedAccess
dc.title	153 Caregiving burden and resilience: a mixed methods analysis in dyads managing a VAD in the home
dc.type	Journal Article
utslib.citation.volume	6
pubs.organisational-group	/University of Technology Sydney
pubs.organisational-group	/University of Technology Sydney/Faculty of Health
utslib.copyright.status	closed_access	*
dc.date.updated	2023-02-02T02:47:00Z
pubs.issue	s1
pubs.publication-status	Published
pubs.volume	6
utslib.citation.issue	s1

Abstract:

OBJECTIVES/GOALS: Caregivers of patients with ventricular assist devices (VAD) are invaluable contributors to patient health, but they may experience psychological symptoms or worsening quality of life related to caregiving. We aimed to explore VAD caregiving burden and resilience comparing high and low burden patient-caregiver dyads. METHODS/STUDY POPULATION: Using a convergent mixed-methods design, we conducted semi-structured interviews and collected self-reported surveys from patient-caregiver dyads. Patients (n=10, mean age 55.8 years) were mostly white males implanted as destination therapy. Caregivers (n=10, mean age 52.6) were mostly white females. Most dyads were spousal (n=6). Caregiver burden was measured with the Zarit Burden Interview Scale, using the median score to categorize lower and higher burden dyads (median = 12, IQR = 8). Data were analyzed using deductive and inductive coding for thematic analysis. RESULTS/ANTICIPATED RESULTS: Lower and higher burden dyads described the shared burden experience of 1) hyper-vigilance and uncertainty immediately post-implant and 2) changing relationship roles. Lower burden dyads were more likely to able to take on responsibilities outside of caregiving. Contextual differences among higher burden dyads included higher financial strain, less social support, worse quality of life (both patients and caregivers) and worse heart failure severity compared to lower burden dyads. All dyads were resilient, using coping strategies like cognitive reframing, positivity, and adaptation to new roles. Higher burden dyads were more vulnerable to coping fatigue and were more likely to express that the VAD had irreversibly changed their life. DISCUSSION/SIGNIFICANCE: VAD caregiver-patient dyads differ in their levels of caregiver burden. Burden experiences and resilience mechanisms may inform future interventions to reduce caregiver burden in diverse VAD dyads. Knowledge of the caregiver experience and factors contributing to burden can inform the healthcare team in providing essential caregiver support.

Please use this identifier to cite or link to this item:

http://hdl.handle.net/10453/165838