Abstract 77: Pilot Outcomes Of A Multi-component Support Intervention For Caregivers Of Persons With Heart Failure

Abshire Saylor, M; Pavlovic, N; DeGroot, L; Peeler, A; Nelson, K; Perrin, N; Gilotra, NA; Wolff, J; Davidson, P; Szanton, SL

Abstract 77: Pilot Outcomes Of A Multi-component Support Intervention For Caregivers Of Persons With Heart Failure

Abshire Saylor, M Pavlovic, N DeGroot, L Peeler, A Nelson, K Perrin, N Gilotra, NA Wolff, J Davidson, P

Szanton, SL

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Publisher:: Wolters Kluwer
Publication Type:: Journal Article
Citation:: Circulation Cardiovascular Quality and Outcomes, 2022, 15, (Suppl_1)
Issue Date:: 2022-05

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Field	Value	Language
dc.contributor.author	Abshire Saylor, M
dc.contributor.author	Pavlovic, N
dc.contributor.author	DeGroot, L
dc.contributor.author	Peeler, A
dc.contributor.author	Nelson, K
dc.contributor.author	Perrin, N
dc.contributor.author	Gilotra, NA
dc.contributor.author	Wolff, J
dc.contributor.author	Davidson, P https://orcid.org/0000-0003-2050-1534
dc.contributor.author	Szanton, SL
dc.date.accessioned	2023-02-02T02:59:33Z
dc.date.available	2023-02-02T02:59:33Z
dc.date.issued	2022-05
dc.identifier.citation	Circulation Cardiovascular Quality and Outcomes, 2022, 15, (Suppl_1)
dc.identifier.issn	1941-7713
dc.identifier.issn	1941-7705
dc.identifier.uri	http://hdl.handle.net/10453/165842
dc.description.abstract	<jats:p> <jats:bold>Background:</jats:bold> Caregivers of persons with heart failure must manage high levels of patient health care utilization, treatment complexity and often unpredictable stressors associated with intermittent symptom exacerbations and mortality. Interventions have often focused on the needs of the person with HF, not the caregiver. Therefore, we developed an intervention using human-centered design to provide caregiver-targeted support for this population. </jats:p> <jats:p> <jats:bold>Objective:</jats:bold> Pilot test the feasibility and gauge initial effect size of the <jats:italic>Caregiver Support</jats:italic> intervention to improve quality of life (mental and physical), caregiver burden, and self-efficacy among family caregivers from baseline to 16 weeks. </jats:p> <jats:p> <jats:bold>Methods:</jats:bold> The intervention includes five individualized, nurse-led sessions over 10 weeks conducted remotely (due to COVID-19). Intervention components focus on 1) nature of caregiving, 2) life purpose, 3) co-development of an action plan to address caregiver goals to reduce caregiver burden and improve caregiver well-being, 4) exploration of social and community resources to support unmet needs, and 5) building a sustainability plan for addressing future caregiver needs. </jats:p> <jats:p>We tested our approach in a randomized waitlist control pilot trial (N=35) from August 2020 through March 2022. We calculated enrollment and retention rates, described acceptability, and computed intervention effect sizes from baseline to 16 weeks.</jats:p> <jats:p> <jats:bold>Results:</jats:bold> 35 out of 101 (35%) eligible caregivers enrolled and were majority female (93.3%), White (60%) and spousal caregivers (63.3%). Average age was 59.4 ± 16.6 years. Overall retention was 69%. All intervention participants completed the five core components, reporting high levels of satisfaction and acceptability of activities. Between-group effect sizes (n=21) at 16 weeks suggest improvement in the mental health component of quality of life, caregiver burden, and self-efficacy (effect sizes 0.88, 0.31, and 0.63, respectively). </jats:p> <jats:p> <jats:bold>Conclusion:</jats:bold> Caregivers found <jats:italic>Caregiver Support</jats:italic> acceptable and study methods were feasible, despite challenges to engaging during the COVID-19 pandemic. Findings provide foundational evidence that this person-centered behavioral intervention can contribute to enhanced caregiver outcomes. </jats:p>
dc.language	en
dc.publisher	Wolters Kluwer
dc.relation.ispartof	Circulation Cardiovascular Quality and Outcomes
dc.relation.isbasedon	10.1161/circoutcomes.15.suppl_1.77
dc.rights	info:eu-repo/semantics/closedAccess
dc.subject	1102 Cardiorespiratory Medicine and Haematology, 1117 Public Health and Health Services
dc.subject.classification	Cardiovascular System & Hematology
dc.title	Abstract 77: Pilot Outcomes Of A Multi-component Support Intervention For Caregivers Of Persons With Heart Failure
dc.type	Journal Article
utslib.citation.volume	15
utslib.for	1102 Cardiorespiratory Medicine and Haematology
utslib.for	1117 Public Health and Health Services
pubs.organisational-group	/University of Technology Sydney
pubs.organisational-group	/University of Technology Sydney/Faculty of Health
utslib.copyright.status	closed_access	*
dc.date.updated	2023-02-02T02:59:32Z
pubs.issue	Suppl_1
pubs.publication-status	Published
pubs.volume	15
utslib.citation.issue	Suppl_1

Abstract:

Background: Caregivers of persons with heart failure must manage high levels of patient health care utilization, treatment complexity and often unpredictable stressors associated with intermittent symptom exacerbations and mortality. Interventions have often focused on the needs of the person with HF, not the caregiver. Therefore, we developed an intervention using human-centered design to provide caregiver-targeted support for this population. Objective: Pilot test the feasibility and gauge initial effect size of the Caregiver Support intervention to improve quality of life (mental and physical), caregiver burden, and self-efficacy among family caregivers from baseline to 16 weeks. Methods: The intervention includes five individualized, nurse-led sessions over 10 weeks conducted remotely (due to COVID-19). Intervention components focus on 1) nature of caregiving, 2) life purpose, 3) co-development of an action plan to address caregiver goals to reduce caregiver burden and improve caregiver well-being, 4) exploration of social and community resources to support unmet needs, and 5) building a sustainability plan for addressing future caregiver needs. We tested our approach in a randomized waitlist control pilot trial (N=35) from August 2020 through March 2022. We calculated enrollment and retention rates, described acceptability, and computed intervention effect sizes from baseline to 16 weeks. Results: 35 out of 101 (35%) eligible caregivers enrolled and were majority female (93.3%), White (60%) and spousal caregivers (63.3%). Average age was 59.4 ± 16.6 years. Overall retention was 69%. All intervention participants completed the five core components, reporting high levels of satisfaction and acceptability of activities. Between-group effect sizes (n=21) at 16 weeks suggest improvement in the mental health component of quality of life, caregiver burden, and self-efficacy (effect sizes 0.88, 0.31, and 0.63, respectively). Conclusion: Caregivers found Caregiver Support acceptable and study methods were feasible, despite challenges to engaging during the COVID-19 pandemic. Findings provide foundational evidence that this person-centered behavioral intervention can contribute to enhanced caregiver outcomes.

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http://hdl.handle.net/10453/165842