Palliative Care Early in the Care Continuum among Patients with Serious Respiratory Illness An Official ATS/AAHPM/HPNA/SWHPN Policy Statement

Sullivan, DR; Iyer, AS; Enguidanos, S; Reinke, LF; Campbell, ML; Courtright, KR; Cox, CE; Farquhar, M; Fasolino, TK; Fogelman, PM; Gershon, L; Gershon, T; Hartog, C; Janssen, DJA; Kross, EK; Lindell, KO; Luther, J; Maddocks, M; McPherson, ML; Meier, DE; Mularski, RA; Nelson, JE; Rabinowitz, E; Rushton, CH; Sloan, DH; Smallwood, N; Thornton, JD; Turnbull, AE; Wilkinson, AM

Palliative Care Early in the Care Continuum among Patients with Serious Respiratory Illness An Official ATS/AAHPM/HPNA/SWHPN Policy Statement

Sullivan, DR Iyer, AS Enguidanos, S Reinke, LF Campbell, ML Courtright, KR Cox, CE Farquhar, M Fasolino, TK Fogelman, PM Gershon, L Gershon, T Hartog, C Janssen, DJA Kross, EK Lindell, KO Luther, J Maddocks, M McPherson, ML Meier, DE Mularski, RA Nelson, JE Rabinowitz, E Rushton, CH Sloan, DH Smallwood, N Thornton, JD Turnbull, AE Wilkinson, AM

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Publisher:: American Thoracic Society
Publication Type:: Journal Article
Citation:: Am J Respir Crit Care Med, 2022, 206, (6), pp. e44-e69
Issue Date:: 2022-09-15

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Field	Value	Language
dc.contributor.author	Sullivan, DR
dc.contributor.author	Iyer, AS
dc.contributor.author	Enguidanos, S
dc.contributor.author	Reinke, LF
dc.contributor.author	Campbell, ML
dc.contributor.author	Courtright, KR
dc.contributor.author	Cox, CE
dc.contributor.author	Farquhar, M
dc.contributor.author	Fasolino, TK
dc.contributor.author	Fogelman, PM
dc.contributor.author	Gershon, L
dc.contributor.author	Gershon, T
dc.contributor.author	Hartog, C
dc.contributor.author	Janssen, DJA
dc.contributor.author	Kross, EK
dc.contributor.author	Lindell, KO
dc.contributor.author	Luther, J
dc.contributor.author	Maddocks, M
dc.contributor.author	McPherson, ML
dc.contributor.author	Meier, DE
dc.contributor.author	Mularski, RA
dc.contributor.author	Nelson, JE
dc.contributor.author	Rabinowitz, E
dc.contributor.author	Rushton, CH
dc.contributor.author	Sloan, DH
dc.contributor.author	Smallwood, N
dc.contributor.author	Thornton, JD
dc.contributor.author	Turnbull, AE
dc.contributor.author	Wilkinson, AM
dc.date.accessioned	2023-05-25T02:14:33Z
dc.date.available	2023-05-25T02:14:33Z
dc.date.issued	2022-09-15
dc.identifier.citation	Am J Respir Crit Care Med, 2022, 206, (6), pp. e44-e69
dc.identifier.issn	1073-449X
dc.identifier.issn	1535-4970
dc.identifier.uri	http://hdl.handle.net/10453/170446
dc.description.abstract	Background Patients with serious respiratory illness and their caregivers suffer considerable burdens and palliative care is a fundamental right for anyone who needs it However the overwhelming majority of patients do not receive timely palliative care before the end of life despite robust evidence for improved outcomes Goals This policy statement by the American Thoracic Society ATS and partnering societies advocates for improved integration of high quality palliative care early in the care continuum for patients with serious respiratory illness and their caregivers and provides clinicians and policymakers with a framework to accomplish this Methods An international and interprofessional expert committee including patients and caregivers achieved consensus across a diverse working group representing pulmonary critical care palliative care bioethics health law and policy geriatrics nursing physiotherapy social work pharmacy patient advocacy psychology and sociology Results The committee developed fundamental values principles and policy recommendations for integrating palliative care in serious respiratory illness care across seven domains 1 delivery models 2 comprehensive symptom assessment and management 3 advance care planning and goals of care discussions 4 caregiver support 5 health disparities 6 mass casualty events and emergency preparedness and 7 research priorities The recommendations encourage timely integration of palliative care promote innovative primary and secondary or specialist palliative care delivery models and advocate for research and policy initiatives to improve the availability and quality of palliative care for patients and their caregivers Conclusions This multisociety policy statement establishes a framework for early palliative care in serious respiratory illness and provides guidance for pulmonary critical care clinicians and policymakers for its proactive integration Copyright 2022 by the American Thoracic Society
dc.format	Print
dc.language	eng
dc.publisher	American Thoracic Society
dc.relation.ispartof	Am J Respir Crit Care Med
dc.relation.isbasedon	10.1164/rccm.202207-1262ST
dc.rights	info:eu-repo/semantics/openAccess
dc.subject	11 Medical and Health Sciences
dc.subject.classification	Respiratory System
dc.subject.mesh	Advance Care Planning
dc.subject.mesh	Continuity of Patient Care
dc.subject.mesh	Humans
dc.subject.mesh	Palliative Care
dc.subject.mesh	Policy
dc.subject.mesh	Societies, Medical
dc.subject.mesh	United States
dc.subject.mesh	Humans
dc.subject.mesh	Palliative Care
dc.subject.mesh	Societies, Medical
dc.subject.mesh	Advance Care Planning
dc.subject.mesh	Continuity of Patient Care
dc.subject.mesh	United States
dc.subject.mesh	Policy
dc.subject.mesh	Advance Care Planning
dc.subject.mesh	Continuity of Patient Care
dc.subject.mesh	Humans
dc.subject.mesh	Palliative Care
dc.subject.mesh	Policy
dc.subject.mesh	Societies, Medical
dc.subject.mesh	United States
dc.title	Palliative Care Early in the Care Continuum among Patients with Serious Respiratory Illness An Official ATS/AAHPM/HPNA/SWHPN Policy Statement
dc.type	Journal Article
utslib.citation.volume	206
utslib.location.activity	United States
utslib.for	11 Medical and Health Sciences
pubs.organisational-group	/University of Technology Sydney
pubs.organisational-group	/University of Technology Sydney/Faculty of Health
utslib.copyright.status	open_access	*
dc.date.updated	2023-05-25T02:14:29Z
pubs.issue	6
pubs.publication-status	Published
pubs.volume	206
utslib.citation.issue	6

Abstract:

Background Patients with serious respiratory illness and their caregivers suffer considerable burdens and palliative care is a fundamental right for anyone who needs it However the overwhelming majority of patients do not receive timely palliative care before the end of life despite robust evidence for improved outcomes Goals This policy statement by the American Thoracic Society ATS and partnering societies advocates for improved integration of high quality palliative care early in the care continuum for patients with serious respiratory illness and their caregivers and provides clinicians and policymakers with a framework to accomplish this Methods An international and interprofessional expert committee including patients and caregivers achieved consensus across a diverse working group representing pulmonary critical care palliative care bioethics health law and policy geriatrics nursing physiotherapy social work pharmacy patient advocacy psychology and sociology Results The committee developed fundamental values principles and policy recommendations for integrating palliative care in serious respiratory illness care across seven domains 1 delivery models 2 comprehensive symptom assessment and management 3 advance care planning and goals of care discussions 4 caregiver support 5 health disparities 6 mass casualty events and emergency preparedness and 7 research priorities The recommendations encourage timely integration of palliative care promote innovative primary and secondary or specialist palliative care delivery models and advocate for research and policy initiatives to improve the availability and quality of palliative care for patients and their caregivers Conclusions This multisociety policy statement establishes a framework for early palliative care in serious respiratory illness and provides guidance for pulmonary critical care clinicians and policymakers for its proactive integration Copyright 2022 by the American Thoracic Society

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http://hdl.handle.net/10453/170446