Human Genetics Society of Australasia Position Statement: Genetic Testing and Personal Insurance Products in Australia.

DeBortoli, E; McInerney-Leo, AM; Ayres, S; Boyle, J; Jacobs, C; Newson, AJ; Education, Ethics and Social Issues Committee of the Human Genetics Society of Australasia,

Human Genetics Society of Australasia Position Statement: Genetic Testing and Personal Insurance Products in Australia.

DeBortoli, E McInerney-Leo, AM Ayres, S Boyle, J Jacobs, C

Newson, AJ Education, Ethics and Social Issues Committee of the Human Genetics Society of Australasia,

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Publisher:: Cambridge University Press (CUP)
Publication Type:: Journal Article
Citation:: Twin Res Hum Genet, 2023, 26, (2), pp. 184-187
Issue Date:: 2023-04

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Field	Value	Language
dc.contributor.author	DeBortoli, E
dc.contributor.author	McInerney-Leo, AM
dc.contributor.author	Ayres, S
dc.contributor.author	Boyle, J
dc.contributor.author	Jacobs, C https://orcid.org/0000-0002-9557-9080
dc.contributor.author	Newson, AJ
dc.contributor.author	Education, Ethics and Social Issues Committee of the Human Genetics Society of Australasia,
dc.date.accessioned	2023-09-06T01:43:59Z
dc.date.available	2023-09-06T01:43:59Z
dc.date.issued	2023-04
dc.identifier.citation	Twin Res Hum Genet, 2023, 26, (2), pp. 184-187
dc.identifier.issn	1832-4274
dc.identifier.issn	1839-2628
dc.identifier.uri	http://hdl.handle.net/10453/171940
dc.description.abstract	The expansion of genetic and genomic testing in clinical practice and research, and the growing market for direct-to-consumer genomic testing has led to increased awareness about the impact of this form of testing on insurance. Genetic or genomic information can be requested by providers of mutually rated insurance products, who may then use it when setting premiums or determining eligibility for cover under a particular product. Australian insurers are subject to relevant legislation and an industry led standard that was updated in 2019 to introduce a moratorium on the use of genetic test results in life insurance underwriting for policies <AU$500K. The Human Genetics Society of Australasia has updated its position statement on genetic testing and life insurance to account for these changes and to increase the scope of the statement to include a wider range of personally-rated insurance products, such as life, critical care, and income protection products. Recommendations include that: providers of professional education involving genetics should include ethical, legal, and social aspects of insurance discrimination in their curricula; the Australian Government take a more active role in regulating use of genetic information in personal insurance; that information obtained in the course of a research project be excluded; insurers seek expert advice when making underwriting decisions regarding genetic testing; and engagement between the insurance industry, regulators, and the genetics profession be improved.
dc.format	Print-Electronic
dc.language	eng
dc.publisher	Cambridge University Press (CUP)
dc.relation.ispartof	Twin Res Hum Genet
dc.relation.isbasedon	10.1017/thg.2023.11
dc.rights	info:eu-repo/semantics/openAccess
dc.subject	1103 Clinical Sciences, 1114 Paediatrics and Reproductive Medicine, 1702 Cognitive Sciences
dc.subject.classification	Genetics & Heredity
dc.subject.classification	3202 Clinical sciences
dc.subject.classification	3215 Reproductive medicine
dc.subject.mesh	Humans
dc.subject.mesh	Australia
dc.subject.mesh	Insurance Selection Bias
dc.subject.mesh	Genetic Testing
dc.subject.mesh	Australasia
dc.subject.mesh	Human Genetics
dc.subject.mesh	Humans
dc.subject.mesh	Insurance Selection Bias
dc.subject.mesh	Australia
dc.subject.mesh	Australasia
dc.subject.mesh	Genetic Testing
dc.subject.mesh	Human Genetics
dc.subject.mesh	Humans
dc.subject.mesh	Australia
dc.subject.mesh	Insurance Selection Bias
dc.subject.mesh	Genetic Testing
dc.subject.mesh	Australasia
dc.subject.mesh	Human Genetics
dc.title	Human Genetics Society of Australasia Position Statement: Genetic Testing and Personal Insurance Products in Australia.
dc.type	Journal Article
utslib.citation.volume	26
utslib.location.activity	England
utslib.for	1103 Clinical Sciences
utslib.for	1114 Paediatrics and Reproductive Medicine
utslib.for	1702 Cognitive Sciences
pubs.organisational-group	/University of Technology Sydney
pubs.organisational-group	/University of Technology Sydney/Faculty of Health
utslib.copyright.status	open_access	*
dc.date.updated	2023-09-06T01:43:58Z
pubs.issue	2
pubs.publication-status	Published
pubs.volume	26
utslib.citation.issue	2

Abstract:

The expansion of genetic and genomic testing in clinical practice and research, and the growing market for direct-to-consumer genomic testing has led to increased awareness about the impact of this form of testing on insurance. Genetic or genomic information can be requested by providers of mutually rated insurance products, who may then use it when setting premiums or determining eligibility for cover under a particular product. Australian insurers are subject to relevant legislation and an industry led standard that was updated in 2019 to introduce a moratorium on the use of genetic test results in life insurance underwriting for policies

Please use this identifier to cite or link to this item:

http://hdl.handle.net/10453/171940