Understanding the valuation of paediatric health-related quality of life: a qualitative study protocol.

Yu, A; Luo, Y; Bahrampour, M; Norman, R; Street, D; Viney, R; Devlin, N; Mulhern, BJ; Quality Of Life in Kids: Key evidence to strengthen decisions in Australia (QUOKKA) project team,

Understanding the valuation of paediatric health-related quality of life: a qualitative study protocol.

Yu, A Luo, Y Bahrampour, M

Norman, R Street, D Viney, R

Devlin, N Mulhern, BJ Quality Of Life in Kids: Key evidence to strengthen decisions in Australia (QUOKKA) project team,

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Publisher:: BMJ
Publication Type:: Journal Article
Citation:: BMJ Open, 2023, 13, (8), pp. e073039
Issue Date:: 2023-08-02

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Field	Value	Language
dc.contributor.author	Yu, A
dc.contributor.author	Luo, Y
dc.contributor.author	Bahrampour, M https://orcid.org/0000-0002-6915-1865
dc.contributor.author	Norman, R
dc.contributor.author	Street, D
dc.contributor.author	Viney, R https://orcid.org/0000-0002-0039-9635
dc.contributor.author	Devlin, N
dc.contributor.author	Mulhern, BJ
dc.contributor.author	Quality Of Life in Kids: Key evidence to strengthen decisions in Australia (QUOKKA) project team,
dc.date.accessioned	2023-09-14T23:36:37Z
dc.date.available	2023-09-14T23:36:37Z
dc.date.issued	2023-08-02
dc.identifier.citation	BMJ Open, 2023, 13, (8), pp. e073039
dc.identifier.issn	2044-6055
dc.identifier.issn	2044-6055
dc.identifier.uri	http://hdl.handle.net/10453/172101
dc.description.abstract	INTRODUCTION: There is evidence from previous studies that adults value paediatric health-related quality of life (HRQoL) and adult HRQoL differently. Less is known about how adolescents value paediatric HRQoL and whether their valuation and decision-making processes differ from those of adults. Discrete choice experiments (DCEs) are widely used to develop value sets for measures of HRQoL, but there is still much to understand about whether and how the methods choices in the implementation of DCE valuation tasks, such as format, presentation and perspective, affect the decision-making process of participants. This paper describes the protocol for a qualitative study that aims to explore the decision-making process of adults and adolescents when completing DCE valuation tasks. The study will also explore the impact of methodological choices in the design of DCE studies (including decisions about format and presentation) on participants' thinking process. METHODS AND ANALYSIS: An interview protocol has been developed using DCE valuation tasks. Interviews will be conducted online via Zoom with both an adolescent and adult sample. In the interview, the participant will be asked to go through some DCE valuation tasks while 'thinking aloud'. After completion of the survey, participants will then be asked some predetermined questions in relation to various aspects of the DCE tasks. Interviews will be recorded and transcribed and analysed using a thematic analysis approach. ETHICS AND DISSEMINATION: Ethics approval for this study has been received for the adult sample (UTS ETH20-9632) as well as the youth sample (UTS ETH22-6970) from the University of Technology Sydney Human Research Ethics Committee. Results from this study will inform the methods to be used in development of value sets for use in the health technology assessment of paediatric interventions and treatments. Findings from this study will also be disseminated through national/international conferences and peer-reviewed journals.
dc.format	Electronic
dc.language	eng
dc.publisher	BMJ
dc.relation.ispartof	BMJ Open
dc.relation.isbasedon	10.1136/bmjopen-2023-073039
dc.rights	info:eu-repo/semantics/restrictedAccess
dc.rights	© Author(s) (or their employer(s)) 2023. Re-use permitted under CC BY-NC. No commercial re-use. See rights and permissions. Published by BMJ
dc.subject	1103 Clinical Sciences, 1117 Public Health and Health Services, 1199 Other Medical and Health Sciences
dc.subject.classification	32 Biomedical and clinical sciences
dc.subject.classification	42 Health sciences
dc.subject.classification	52 Psychology
dc.subject.mesh	Adult
dc.subject.mesh	Adolescent
dc.subject.mesh	Humans
dc.subject.mesh	Child
dc.subject.mesh	Quality of Life
dc.subject.mesh	Qualitative Research
dc.subject.mesh	Choice Behavior
dc.subject.mesh	Surveys and Questionnaires
dc.subject.mesh	Research Design
dc.subject.mesh	Humans
dc.subject.mesh	Choice Behavior
dc.subject.mesh	Qualitative Research
dc.subject.mesh	Research Design
dc.subject.mesh	Quality of Life
dc.subject.mesh	Adolescent
dc.subject.mesh	Adult
dc.subject.mesh	Child
dc.subject.mesh	Surveys and Questionnaires
dc.subject.mesh	Adult
dc.subject.mesh	Adolescent
dc.subject.mesh	Humans
dc.subject.mesh	Child
dc.subject.mesh	Quality of Life
dc.subject.mesh	Qualitative Research
dc.subject.mesh	Choice Behavior
dc.subject.mesh	Surveys and Questionnaires
dc.subject.mesh	Research Design
dc.title	Understanding the valuation of paediatric health-related quality of life: a qualitative study protocol.
dc.type	Journal Article
utslib.citation.volume	13
utslib.location.activity	England
utslib.for	1103 Clinical Sciences
utslib.for	1117 Public Health and Health Services
utslib.for	1199 Other Medical and Health Sciences
pubs.organisational-group	/University of Technology Sydney
pubs.organisational-group	/University of Technology Sydney/Faculty of Health
pubs.organisational-group	/University of Technology Sydney/Strength - CHERE - Centre for Health Economics Research and Evaluation
pubs.organisational-group	/University of Technology Sydney/Faculty of Health/Centre for Health Economics Research and Evaluation
utslib.copyright.status	open_access	*
dc.date.updated	2023-09-14T23:36:35Z
pubs.issue	8
pubs.publication-status	Published online
pubs.volume	13
utslib.citation.issue	8

Abstract:

INTRODUCTION: There is evidence from previous studies that adults value paediatric health-related quality of life (HRQoL) and adult HRQoL differently. Less is known about how adolescents value paediatric HRQoL and whether their valuation and decision-making processes differ from those of adults. Discrete choice experiments (DCEs) are widely used to develop value sets for measures of HRQoL, but there is still much to understand about whether and how the methods choices in the implementation of DCE valuation tasks, such as format, presentation and perspective, affect the decision-making process of participants. This paper describes the protocol for a qualitative study that aims to explore the decision-making process of adults and adolescents when completing DCE valuation tasks. The study will also explore the impact of methodological choices in the design of DCE studies (including decisions about format and presentation) on participants' thinking process. METHODS AND ANALYSIS: An interview protocol has been developed using DCE valuation tasks. Interviews will be conducted online via Zoom with both an adolescent and adult sample. In the interview, the participant will be asked to go through some DCE valuation tasks while 'thinking aloud'. After completion of the survey, participants will then be asked some predetermined questions in relation to various aspects of the DCE tasks. Interviews will be recorded and transcribed and analysed using a thematic analysis approach. ETHICS AND DISSEMINATION: Ethics approval for this study has been received for the adult sample (UTS ETH20-9632) as well as the youth sample (UTS ETH22-6970) from the University of Technology Sydney Human Research Ethics Committee. Results from this study will inform the methods to be used in development of value sets for use in the health technology assessment of paediatric interventions and treatments. Findings from this study will also be disseminated through national/international conferences and peer-reviewed journals.

Please use this identifier to cite or link to this item:

http://hdl.handle.net/10453/172101