Botulinum toxin and conservative treatment strategies in people with cervical dystonia: an online survey.

Boyce, MJ; McCambridge, AB; Bradnam, LV; Canning, CG; De Oliveira, CQ; Verhagen, AP

Botulinum toxin and conservative treatment strategies in people with cervical dystonia: an online survey.

Boyce, MJ McCambridge, AB Bradnam, LV Canning, CG De Oliveira, CQ Verhagen, AP

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Publication Type:: Journal Article
Citation:: J Neural Transm (Vienna), 2023
Issue Date:: 2023-10-13

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Field	Value	Language
dc.contributor.author	Boyce, MJ
dc.contributor.author	McCambridge, AB
dc.contributor.author	Bradnam, LV
dc.contributor.author	Canning, CG
dc.contributor.author	De Oliveira, CQ
dc.contributor.author	Verhagen, AP
dc.date.accessioned	2023-10-18T01:23:17Z
dc.date.available	2023-09-28
dc.date.available	2023-10-18T01:23:17Z
dc.date.issued	2023-10-13
dc.identifier.citation	J Neural Transm (Vienna), 2023
dc.identifier.issn	0300-9564
dc.identifier.issn	1435-1463
dc.identifier.uri	http://hdl.handle.net/10453/172776
dc.description.abstract	Isolated cervical dystonia is a focal, idiopathic dystonia affecting the neck muscles. Treatment usually consists of botulinum neurotoxin (BoNT) injections into the dystonic muscles. Our aim is to investigate the use of BoNT treatment and conservative treatments by people living with cervical dystonia. An online survey in English was conducted between June and August 2022. Participants were eligible to participate if they were living with cervical dystonia, were over 18 years old and could read and understand English. The survey consisted of demographic questions, characteristics of dystonia, questions relating to BoNT use and the perceived utility of conservative treatments. The data were analysed descriptively, and open-ended questions were grouped into similar topics represented by direct quotes. We received 128 responses from people with cervical dystonia, with an average age of 59 years and 77% women. Most participants (52%) described their cervical dystonia as mild to moderate with an average pain score of 5/10. Eighty-two (64%) participants were having regular BoNT injections, with overall positive perceived effects. Common activities reported to improve the symptoms were the use of heat packs, massage, relaxation, physiotherapy and participation in general exercise. Common coping strategies reported were getting sufficient rest, having the support of friends and family, and remaining engaged in enjoyable hobbies. We found that most participants received regular BoNT injections and that heat packs, exercise, massage, physiotherapy and relaxation were mostly perceived as effective in reducing the symptoms of cervical dystonia.
dc.format	Print-Electronic
dc.language	eng
dc.relation.ispartof	J Neural Transm (Vienna)
dc.relation.isbasedon	10.1007/s00702-023-02707-5
dc.rights	info:eu-repo/semantics/openAccess
dc.subject	1109 Neurosciences, 1701 Psychology
dc.subject.classification	Neurology & Neurosurgery
dc.subject.classification	3209 Neurosciences
dc.subject.classification	5202 Biological psychology
dc.title	Botulinum toxin and conservative treatment strategies in people with cervical dystonia: an online survey.
dc.type	Journal Article
utslib.location.activity	Austria
utslib.for	1109 Neurosciences
utslib.for	1701 Psychology
pubs.organisational-group	/University of Technology Sydney
pubs.organisational-group	/University of Technology Sydney/Faculty of Health
utslib.copyright.status	open_access	*
dc.date.updated	2023-10-18T01:23:16Z
pubs.publication-status	Published online

Abstract:

Isolated cervical dystonia is a focal, idiopathic dystonia affecting the neck muscles. Treatment usually consists of botulinum neurotoxin (BoNT) injections into the dystonic muscles. Our aim is to investigate the use of BoNT treatment and conservative treatments by people living with cervical dystonia. An online survey in English was conducted between June and August 2022. Participants were eligible to participate if they were living with cervical dystonia, were over 18 years old and could read and understand English. The survey consisted of demographic questions, characteristics of dystonia, questions relating to BoNT use and the perceived utility of conservative treatments. The data were analysed descriptively, and open-ended questions were grouped into similar topics represented by direct quotes. We received 128 responses from people with cervical dystonia, with an average age of 59 years and 77% women. Most participants (52%) described their cervical dystonia as mild to moderate with an average pain score of 5/10. Eighty-two (64%) participants were having regular BoNT injections, with overall positive perceived effects. Common activities reported to improve the symptoms were the use of heat packs, massage, relaxation, physiotherapy and participation in general exercise. Common coping strategies reported were getting sufficient rest, having the support of friends and family, and remaining engaged in enjoyable hobbies. We found that most participants received regular BoNT injections and that heat packs, exercise, massage, physiotherapy and relaxation were mostly perceived as effective in reducing the symptoms of cervical dystonia.

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http://hdl.handle.net/10453/172776