Co‐designing an online treatment decision aid for men with low‐risk prostate cancer: Navigate

Schofield, P; Hyatt, A; White, A; White, F; Frydenberg, M; Chambers, S; Gardiner, R; Murphy, DG; Cavedon, L; Millar, J; Richards, N; Murphy, B; Juraskova, I

Co‐designing an online treatment decision aid for men with low‐risk prostate cancer: Navigate

Schofield, P Hyatt, A White, A White, F Frydenberg, M Chambers, S

Gardiner, R Murphy, DG Cavedon, L Millar, J Richards, N Murphy, B Juraskova, I

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Publisher:: Wiley
Publication Type:: Journal Article
Citation:: BJUI Compass

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Field	Value	Language
dc.contributor.author	Schofield, P
dc.contributor.author	Hyatt, A
dc.contributor.author	White, A
dc.contributor.author	White, F
dc.contributor.author	Frydenberg, M
dc.contributor.author	Chambers, S https://orcid.org/0000-0003-2369-6111
dc.contributor.author	Gardiner, R
dc.contributor.author	Murphy, DG
dc.contributor.author	Cavedon, L
dc.contributor.author	Millar, J
dc.contributor.author	Richards, N
dc.contributor.author	Murphy, B
dc.contributor.author	Juraskova, I
dc.date.accessioned	2023-11-10T03:59:03Z
dc.date.available	2023-11-10T03:59:03Z
dc.identifier.citation	BJUI Compass
dc.identifier.issn	2688-4526
dc.identifier.issn	2688-4526
dc.identifier.uri	http://hdl.handle.net/10453/173312
dc.description.abstract	<jats:title>Abstract</jats:title><jats:sec><jats:title>Objectives</jats:title><jats:p>To develop an online treatment decision aid (OTDA) to assist patients with low‐risk prostate cancer (LRPC) and their partners in making treatment decisions.</jats:p></jats:sec><jats:sec><jats:title>Patients and methods</jats:title><jats:p><jats:italic>Navigate</jats:italic>, an OTDA for LRPC, was rigorously co‐designed by patients with a confirmed diagnosis or at risk of LRPC and their partners, clinicians, researchers and website designers/developers. A theoretical model guided the development process. A mixed methods approach was used incorporating (1) evidence for essential design elements for OTDAs; (2) evidence for treatment options for LRPC; (3) an iterative co‐design process involving stakeholder workshops and prototype review; and (4) expert rating using the International Patient Decision Aid Standards (IPDAS). Three co‐design workshops with potential users (<jats:italic>n</jats:italic> = 12) and research and web‐design team members (<jats:italic>n</jats:italic> = 10) were conducted. Results from each workshop informed OTDA modifications to the OTDA for testing in the subsequent workshop. Clinician (<jats:italic>n</jats:italic> = 6) and consumer (<jats:italic>n</jats:italic> = 9) feedback on usability and content on the penultimate version was collected.</jats:p></jats:sec><jats:sec><jats:title>Results</jats:title><jats:p>The initial workshops identified key content and design features that were incorporated into the draft OTDA, re‐workshopped and incorporated into the penultimate OTDA. Expert feedback on usability and content was also incorporated into the final OTDA. The final OTDA was deemed comprehensive, clear and appropriate and met all IPDAS criteria.</jats:p></jats:sec><jats:sec><jats:title>Conclusion</jats:title><jats:p><jats:italic>Navigate</jats:italic> is an interactive and acceptable OTDA for Australian men with LRPC designed by men for men using a co‐design methodology. The effectiveness of <jats:italic>Navigate</jats:italic> in assisting patient decision‐making is currently being assessed in a randomised controlled trial with patients with LRPC and their partners.</jats:p></jats:sec>
dc.language	en
dc.publisher	Wiley
dc.relation	http://purl.org/au-research/grants/nhmrc/1079720
dc.relation	http://purl.org/au-research/grants/nhmrc/GNT1079720
dc.relation.ispartof	BJUI Compass
dc.relation.isbasedon	10.1002/bco2.279
dc.rights	info:eu-repo/semantics/openAccess
dc.subject.classification	3202 Clinical sciences
dc.title	Co‐designing an online treatment decision aid for men with low‐risk prostate cancer: Navigate
dc.type	Journal Article
pubs.organisational-group	/University of Technology Sydney
pubs.organisational-group	/University of Technology Sydney/Faculty of Health
utslib.copyright.status	open_access	*
dc.date.updated	2023-11-10T03:59:01Z
pubs.publication-status	Published online

Abstract:

AbstractObjectivesTo develop an online treatment decision aid (OTDA) to assist patients with low‐risk prostate cancer (LRPC) and their partners in making treatment decisions.Patients and methodsNavigate, an OTDA for LRPC, was rigorously co‐designed by patients with a confirmed diagnosis or at risk of LRPC and their partners, clinicians, researchers and website designers/developers. A theoretical model guided the development process. A mixed methods approach was used incorporating (1) evidence for essential design elements for OTDAs; (2) evidence for treatment options for LRPC; (3) an iterative co‐design process involving stakeholder workshops and prototype review; and (4) expert rating using the International Patient Decision Aid Standards (IPDAS). Three co‐design workshops with potential users (n = 12) and research and web‐design team members (n = 10) were conducted. Results from each workshop informed OTDA modifications to the OTDA for testing in the subsequent workshop. Clinician (n = 6) and consumer (n = 9) feedback on usability and content on the penultimate version was collected.ResultsThe initial workshops identified key content and design features that were incorporated into the draft OTDA, re‐workshopped and incorporated into the penultimate OTDA. Expert feedback on usability and content was also incorporated into the final OTDA. The final OTDA was deemed comprehensive, clear and appropriate and met all IPDAS criteria.ConclusionNavigate is an interactive and acceptable OTDA for Australian men with LRPC designed by men for men using a co‐design methodology. The effectiveness of Navigate in assisting patient decision‐making is currently being assessed in a randomised controlled trial with patients with LRPC and their partners.

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http://hdl.handle.net/10453/173312