Prevalence and trends for Aboriginal and Torres Strait Islander children living with cerebral palsy: A birds-eye view.

Martin, T; McIntyre, S; Waight, E; Baynam, G; Watson, L; Langdon, K; Woolfenden, S; Smithers-Sheedy, H; Sherwood, J; ACPR Birds-Eye View Group,

Prevalence and trends for Aboriginal and Torres Strait Islander children living with cerebral palsy: A birds-eye view.

Martin, T McIntyre, S Waight, E Baynam, G Watson, L Langdon, K Woolfenden, S Smithers-Sheedy, H Sherwood, J ACPR Birds-Eye View Group,

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Publisher:: Wiley
Publication Type:: Journal Article
Citation:: Dev Med Child Neurol, 2023, 65, (11), pp. 1475-1485
Issue Date:: 2023-11

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Field	Value	Language
dc.contributor.author	Martin, T
dc.contributor.author	McIntyre, S
dc.contributor.author	Waight, E
dc.contributor.author	Baynam, G
dc.contributor.author	Watson, L
dc.contributor.author	Langdon, K
dc.contributor.author	Woolfenden, S
dc.contributor.author	Smithers-Sheedy, H
dc.contributor.author	Sherwood, J
dc.contributor.author	ACPR Birds-Eye View Group,
dc.date.accessioned	2024-05-23T20:56:12Z
dc.date.available	2023-03-17
dc.date.available	2024-05-23T20:56:12Z
dc.date.issued	2023-11
dc.identifier.citation	Dev Med Child Neurol, 2023, 65, (11), pp. 1475-1485
dc.identifier.issn	0012-1622
dc.identifier.issn	1469-8749
dc.identifier.uri	http://hdl.handle.net/10453/179173
dc.description.abstract	AIM: To provide a birds-eye view of the trends of cerebral palsy (CP) for Australian Aboriginal and Torres Strait Islander children and young adults. METHOD: Data were obtained for this population-based observational study from the Australian Cerebral Palsy Register (ACPR), birth years 1995 to 2014. The Indigenous status of children was classified by maternal Aboriginal and Torres Strait Islander or non-Indigenous status. Descriptive statistics were calculated for socio-demographic and clinical characteristics. Prenatal/perinatal and post-neonatal birth prevalence was calculated per 1000 live births and per 10 000 live births respectively, and Poisson regression used to assess trends. RESULTS: Data from the ACPR were available for 514 Aboriginal and Torres Strait Islander individuals with CP. Most children could walk independently (56%) and lived in urban or regional areas (72%). One in five children lived in socioeconomically disadvantaged remote/very remote areas. The birth prevalence of prenatal/perinatal CP declined after the mid-2000s from a high of 4.8 (95% confidence interval 3.2-7.0) to 1.9 per 1000 live births (95% confidence interval 1.1-3.2) (2013-2014), with marked declines observed for term births and teenage mothers. INTERPRETATION: The birth prevalence of CP in Aboriginal and Torres Strait Islander children in Australia declined between the mid-2000s and 2013 to 2014. This birds-eye view provides key stakeholders with new knowledge to advocate for sustainable funding for accessible, culturally safe, antenatal and CP services. WHAT THIS PAPER ADDS: Birth prevalence of cerebral palsy (CP) is beginning to decline for Aboriginal and Torres Strait Islanders. Recent CP birth prevalence for Aboriginal and Torres Strait Islanders is 1.9 per 1000 live births. Most children with CP live in more populated areas rather than remote or very remote areas. One in five Aboriginal and Torres Strait Islander children with CP live in socioeconomically disadvantaged remote areas.
dc.format	Print-Electronic
dc.language	eng
dc.publisher	Wiley
dc.relation.ispartof	Dev Med Child Neurol
dc.relation.isbasedon	10.1111/dmcn.15617
dc.rights	info:eu-repo/semantics/openAccess
dc.subject	11 Medical and Health Sciences
dc.subject.classification	Pediatrics
dc.subject.classification	32 Biomedical and clinical sciences
dc.subject.classification	42 Health sciences
dc.subject.classification	52 Psychology
dc.subject.mesh	Adolescent
dc.subject.mesh	Australia
dc.subject.mesh	Australian Aboriginal and Torres Strait Islander Peoples
dc.subject.mesh	Cerebral Palsy
dc.subject.mesh	Child
dc.subject.mesh	Humans
dc.subject.mesh	Prevalence
dc.subject.mesh	Young Adult
dc.subject.mesh	Adolescent
dc.subject.mesh	Child
dc.subject.mesh	Humans
dc.subject.mesh	Young Adult
dc.subject.mesh	Australia
dc.subject.mesh	Australian Aboriginal and Torres Strait Islander Peoples
dc.subject.mesh	Cerebral Palsy
dc.subject.mesh	Prevalence
dc.subject.mesh	Humans
dc.subject.mesh	Cerebral Palsy
dc.subject.mesh	Prevalence
dc.subject.mesh	Adolescent
dc.subject.mesh	Child
dc.subject.mesh	Australia
dc.subject.mesh	Young Adult
dc.subject.mesh	Australian Aboriginal and Torres Strait Islander Peoples
dc.subject.mesh	Adolescent
dc.subject.mesh	Child
dc.subject.mesh	Humans
dc.subject.mesh	Young Adult
dc.subject.mesh	Australia
dc.subject.mesh	Australian Aboriginal and Torres Strait Islander Peoples
dc.subject.mesh	Cerebral Palsy
dc.subject.mesh	Prevalence
dc.title	Prevalence and trends for Aboriginal and Torres Strait Islander children living with cerebral palsy: A birds-eye view.
dc.type	Journal Article
utslib.citation.volume	65
utslib.location.activity	England
utslib.for	11 Medical and Health Sciences
pubs.organisational-group	University of Technology Sydney
pubs.organisational-group	University of Technology Sydney/Provost
pubs.organisational-group	University of Technology Sydney/Provost/Jumbunna
utslib.copyright.status	open_access	*
pubs.consider-herdc	false
dc.date.updated	2024-05-23T20:56:06Z
pubs.issue	11
pubs.publication-status	Published
pubs.volume	65
utslib.citation.issue	11

Abstract:

AIM: To provide a birds-eye view of the trends of cerebral palsy (CP) for Australian Aboriginal and Torres Strait Islander children and young adults. METHOD: Data were obtained for this population-based observational study from the Australian Cerebral Palsy Register (ACPR), birth years 1995 to 2014. The Indigenous status of children was classified by maternal Aboriginal and Torres Strait Islander or non-Indigenous status. Descriptive statistics were calculated for socio-demographic and clinical characteristics. Prenatal/perinatal and post-neonatal birth prevalence was calculated per 1000 live births and per 10 000 live births respectively, and Poisson regression used to assess trends. RESULTS: Data from the ACPR were available for 514 Aboriginal and Torres Strait Islander individuals with CP. Most children could walk independently (56%) and lived in urban or regional areas (72%). One in five children lived in socioeconomically disadvantaged remote/very remote areas. The birth prevalence of prenatal/perinatal CP declined after the mid-2000s from a high of 4.8 (95% confidence interval 3.2-7.0) to 1.9 per 1000 live births (95% confidence interval 1.1-3.2) (2013-2014), with marked declines observed for term births and teenage mothers. INTERPRETATION: The birth prevalence of CP in Aboriginal and Torres Strait Islander children in Australia declined between the mid-2000s and 2013 to 2014. This birds-eye view provides key stakeholders with new knowledge to advocate for sustainable funding for accessible, culturally safe, antenatal and CP services. WHAT THIS PAPER ADDS: Birth prevalence of cerebral palsy (CP) is beginning to decline for Aboriginal and Torres Strait Islanders. Recent CP birth prevalence for Aboriginal and Torres Strait Islanders is 1.9 per 1000 live births. Most children with CP live in more populated areas rather than remote or very remote areas. One in five Aboriginal and Torres Strait Islander children with CP live in socioeconomically disadvantaged remote areas.

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http://hdl.handle.net/10453/179173