Experience of care from the perspectives of inpatients with palliative care needs: a cross-sectional study using a patient reported experience measure (PREM).
- Publisher:
- BMC
- Publication Type:
- Journal Article
- Citation:
- BMC Palliat Care, 2024, 23, (1), pp. 177
- Issue Date:
- 2024-07-18
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Field | Value | Language |
---|---|---|
dc.contributor.author | Singh, GK | |
dc.contributor.author | Mudge, A | |
dc.contributor.author | Matthews, R | |
dc.contributor.author | Yates, P | |
dc.contributor.author | Phillips, JL | |
dc.contributor.author |
Virdun, C |
|
dc.date.accessioned | 2024-08-06T03:52:25Z | |
dc.date.available | 2024-06-26 | |
dc.date.available | 2024-08-06T03:52:25Z | |
dc.date.issued | 2024-07-18 | |
dc.identifier.citation | BMC Palliat Care, 2024, 23, (1), pp. 177 | |
dc.identifier.issn | 1472-684X | |
dc.identifier.issn | 1472-684X | |
dc.identifier.uri | http://hdl.handle.net/10453/180171 | |
dc.description.abstract | BACKGROUND: Improving palliative care for inpatients is urgently needed. Data from patient-reported experience measures (PREM) can assist in identifying areas for focused improvement. This study aimed to describe patient reported experience of care in inpatients with palliative care needs, to inform a baseline understanding of care experience and identify key areas for improvement. METHODS: Cross-sectional study design where inpatients with palliative care needs were invited to complete 'consideRATE,' a patient reported experience measure of care, over six months in 2022. Inpatients with palliative care needs receiving care on an oncology, general medicine/renal and general medicine/respiratory ward (n = 3) at an Australian metropolitan hospital were screened for eligibility. Carers could provide proxy responses where inpatients were unable to participate. Descriptive statistics were used to analyse quantitative ratings, whilst free text responses were analysed using integrated thematic analysis. RESULTS: One-hundred and twenty participants (108 patients and 12 carers) completed consideRATE. The questions with the highest number of 'very good' responses were attention to symptoms, attention to feelings and attention to what matters most; the questions with the lowest number of 'very good' responses was attention to patients' affairs, what to expect, and the environment of care. Almost half (n = 57, 48%) indicated that attention to patients' affairs 'did not apply' to their inpatient stay. Analysis of 532 free text responses across 8 questions highlighted the importance of feeling supported, feeling informed, feeling heard and navigating the clinical environment. CONCLUSION: Enabling inpatients with palliative care needs to provide feedback about their experience of care is one method of ensuring improvements matter to patients. Supporting clinical teams to understand and use these data to make tailored improvements is the next step in this multi-phase research. | |
dc.format | Electronic | |
dc.language | eng | |
dc.publisher | BMC | |
dc.relation.ispartof | BMC Palliat Care | |
dc.relation.isbasedon | 10.1186/s12904-024-01494-4 | |
dc.rights | info:eu-repo/semantics/openAccess | |
dc.subject | 1110 Nursing, 1117 Public Health and Health Services | |
dc.subject.classification | Gerontology | |
dc.subject.classification | 4203 Health services and systems | |
dc.subject.classification | 4205 Nursing | |
dc.subject.mesh | Humans | |
dc.subject.mesh | Cross-Sectional Studies | |
dc.subject.mesh | Palliative Care | |
dc.subject.mesh | Male | |
dc.subject.mesh | Female | |
dc.subject.mesh | Middle Aged | |
dc.subject.mesh | Aged | |
dc.subject.mesh | Inpatients | |
dc.subject.mesh | Aged, 80 and over | |
dc.subject.mesh | Adult | |
dc.subject.mesh | Australia | |
dc.subject.mesh | Surveys and Questionnaires | |
dc.subject.mesh | Patient Satisfaction | |
dc.subject.mesh | Patient Reported Outcome Measures | |
dc.subject.mesh | Humans | |
dc.subject.mesh | Palliative Care | |
dc.subject.mesh | Cross-Sectional Studies | |
dc.subject.mesh | Adult | |
dc.subject.mesh | Aged | |
dc.subject.mesh | Aged, 80 and over | |
dc.subject.mesh | Middle Aged | |
dc.subject.mesh | Inpatients | |
dc.subject.mesh | Patient Satisfaction | |
dc.subject.mesh | Australia | |
dc.subject.mesh | Female | |
dc.subject.mesh | Male | |
dc.subject.mesh | Surveys and Questionnaires | |
dc.subject.mesh | Patient Reported Outcome Measures | |
dc.subject.mesh | Humans | |
dc.subject.mesh | Cross-Sectional Studies | |
dc.subject.mesh | Palliative Care | |
dc.subject.mesh | Male | |
dc.subject.mesh | Female | |
dc.subject.mesh | Middle Aged | |
dc.subject.mesh | Aged | |
dc.subject.mesh | Inpatients | |
dc.subject.mesh | Aged, 80 and over | |
dc.subject.mesh | Adult | |
dc.subject.mesh | Australia | |
dc.subject.mesh | Surveys and Questionnaires | |
dc.subject.mesh | Patient Satisfaction | |
dc.subject.mesh | Patient Reported Outcome Measures | |
dc.title | Experience of care from the perspectives of inpatients with palliative care needs: a cross-sectional study using a patient reported experience measure (PREM). | |
dc.type | Journal Article | |
utslib.citation.volume | 23 | |
utslib.location.activity | England | |
utslib.for | 1110 Nursing | |
utslib.for | 1117 Public Health and Health Services | |
pubs.organisational-group | University of Technology Sydney | |
pubs.organisational-group | University of Technology Sydney/Faculty of Health | |
pubs.organisational-group | University of Technology Sydney/Strength - CHSP - Health Services and Practice | |
pubs.organisational-group | University of Technology Sydney/Strength - CHT - Health Technologies | |
pubs.organisational-group | University of Technology Sydney/Faculty of Health/IMPACCT | |
pubs.organisational-group | University of Technology Sydney/All Manual Groups | |
pubs.organisational-group | University of Technology Sydney/All Manual Groups/Centre for Health Technologies (CHT) | |
utslib.copyright.status | open_access | * |
dc.rights.license | This work is licensed under a Creative Commons Attribution 4.0 International License (CC BY 4.0). To view a copy of this license, visit https://creativecommons.org/licenses/by/4.0/ | |
dc.date.updated | 2024-08-06T03:52:21Z | |
pubs.issue | 1 | |
pubs.publication-status | Published online | |
pubs.volume | 23 | |
utslib.citation.issue | 1 |
Abstract:
BACKGROUND: Improving palliative care for inpatients is urgently needed. Data from patient-reported experience measures (PREM) can assist in identifying areas for focused improvement. This study aimed to describe patient reported experience of care in inpatients with palliative care needs, to inform a baseline understanding of care experience and identify key areas for improvement. METHODS: Cross-sectional study design where inpatients with palliative care needs were invited to complete 'consideRATE,' a patient reported experience measure of care, over six months in 2022. Inpatients with palliative care needs receiving care on an oncology, general medicine/renal and general medicine/respiratory ward (n = 3) at an Australian metropolitan hospital were screened for eligibility. Carers could provide proxy responses where inpatients were unable to participate. Descriptive statistics were used to analyse quantitative ratings, whilst free text responses were analysed using integrated thematic analysis. RESULTS: One-hundred and twenty participants (108 patients and 12 carers) completed consideRATE. The questions with the highest number of 'very good' responses were attention to symptoms, attention to feelings and attention to what matters most; the questions with the lowest number of 'very good' responses was attention to patients' affairs, what to expect, and the environment of care. Almost half (n = 57, 48%) indicated that attention to patients' affairs 'did not apply' to their inpatient stay. Analysis of 532 free text responses across 8 questions highlighted the importance of feeling supported, feeling informed, feeling heard and navigating the clinical environment. CONCLUSION: Enabling inpatients with palliative care needs to provide feedback about their experience of care is one method of ensuring improvements matter to patients. Supporting clinical teams to understand and use these data to make tailored improvements is the next step in this multi-phase research.
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