Advance personal planning knowledge, attitudes, and participation amongst community-dwelling older people living in regional New South Wales, Australia: A cross-sectional survey

Cameron, E; Ries, N; Waller, A; Johnston, B; Anderson, J; Bryant, J

Advance personal planning knowledge, attitudes, and participation amongst community-dwelling older people living in regional New South Wales, Australia: A cross-sectional survey

Cameron, E Ries, N

Waller, A Johnston, B Anderson, J Bryant, J

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Publisher:: Public Library of Science (PLoS)
Publication Type:: Journal Article
Citation:: PLoS ONE, 2024, 19, (8)
Issue Date:: 2024-08-21

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Field	Value	Language
dc.contributor.author	Cameron, E
dc.contributor.author	Ries, N https://orcid.org/0000-0002-5264-6722
dc.contributor.author	Waller, A
dc.contributor.author	Johnston, B
dc.contributor.author	Anderson, J
dc.contributor.author	Bryant, J
dc.date.accessioned	2024-08-21T22:17:43Z
dc.date.available	2024-08-21T22:17:43Z
dc.date.issued	2024-08-21
dc.identifier.citation	PLoS ONE, 2024, 19, (8)
dc.identifier.issn	1932-6203
dc.identifier.issn	1932-6203
dc.identifier.uri	http://hdl.handle.net/10453/180532
dc.description.abstract	Background Advance personal planning (APP) involves planning for future periods of incapacity, including making legal decisions and documents. APP ensures that a person’s values and preferences are known and respected. This study aimed to examine knowledge of APP, attitudes and confidence towards APP, and participation in APP activities among older people residing in regional and rural areas. Methods A cross-sectional survey was conducted with people aged over 65 years residing in and around regional towns in New South Wales, Australia. Participants responded to a social media advertisement or information provided through a community organisation. Data was collected via pen and paper survey or an online survey. The survey was developed for the study and included questions about the participant and their experiences with APP. Poisson regression modelling was conducted to explore the relationship between APP participation and APP knowledge, confidence and attitudes as well as the participant characteristics associated with APP participation. Results Overall, 216 people completed the survey. Most participants had a will (90%) but only a third (32%) had documented an advance care directive. Knowledge of APP was low with only 2.8% of participants correctly answering all 6 knowledge questions. Participants had a positive attitude towards APP and high level of confidence that they could discuss APP issues with important people in their life. Those with increased knowledge, confidence and attitude towards APP were significantly more likely to participate in APP activities. Older age and having private health insurance were significantly associated with engaging in APP activities. Increased frailty and the presence of health conditions were not associated with increased APP participation. Conclusions There is a need to increase engagement with APP particularly among those who may be considered frail or have chronic health conditions. Increasing knowledge of, confidence and attitudes towards, APP could help to increase engagement in APP activities.
dc.language	en
dc.publisher	Public Library of Science (PLoS)
dc.relation	http://purl.org/au-research/grants/arc/DP190100861
dc.relation.ispartof	PLoS ONE
dc.relation.isbasedon	10.1371/journal.pone.0309152
dc.rights	info:eu-repo/semantics/openAccess
dc.subject.classification	General Science & Technology
dc.title	Advance personal planning knowledge, attitudes, and participation amongst community-dwelling older people living in regional New South Wales, Australia: A cross-sectional survey
dc.type	Journal Article
utslib.citation.volume	19
pubs.organisational-group	University of Technology Sydney
pubs.organisational-group	University of Technology Sydney/Faculty of Law
pubs.organisational-group	University of Technology Sydney/Strength - LHJ - Law Health Justice
pubs.organisational-group	University of Technology Sydney/All Manual Groups
pubs.organisational-group	University of Technology Sydney/All Manual Groups/UTS Ageing Research Collaborative (UARC)
utslib.copyright.status	open_access	*
pubs.consider-herdc	true
dc.rights.license	This work is licensed under a Creative Commons Attribution 4.0 International License (CC BY 4.0). To view a copy of this license, visit https://creativecommons.org/licenses/by/4.0/
dc.date.updated	2024-08-21T22:17:42Z
pubs.issue	8
pubs.publication-status	Published online
pubs.volume	19
utslib.citation.issue	8

Abstract:

Background Advance personal planning (APP) involves planning for future periods of incapacity, including making legal decisions and documents. APP ensures that a person’s values and preferences are known and respected. This study aimed to examine knowledge of APP, attitudes and confidence towards APP, and participation in APP activities among older people residing in regional and rural areas. Methods A cross-sectional survey was conducted with people aged over 65 years residing in and around regional towns in New South Wales, Australia. Participants responded to a social media advertisement or information provided through a community organisation. Data was collected via pen and paper survey or an online survey. The survey was developed for the study and included questions about the participant and their experiences with APP. Poisson regression modelling was conducted to explore the relationship between APP participation and APP knowledge, confidence and attitudes as well as the participant characteristics associated with APP participation. Results Overall, 216 people completed the survey. Most participants had a will (90%) but only a third (32%) had documented an advance care directive. Knowledge of APP was low with only 2.8% of participants correctly answering all 6 knowledge questions. Participants had a positive attitude towards APP and high level of confidence that they could discuss APP issues with important people in their life. Those with increased knowledge, confidence and attitude towards APP were significantly more likely to participate in APP activities. Older age and having private health insurance were significantly associated with engaging in APP activities. Increased frailty and the presence of health conditions were not associated with increased APP participation. Conclusions There is a need to increase engagement with APP particularly among those who may be considered frail or have chronic health conditions. Increasing knowledge of, confidence and attitudes towards, APP could help to increase engagement in APP activities.

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