The RETRIEVE Checklist for Studies Reporting the Elicitation of Stated Preferences for Child Health-Related Quality of Life.

Bailey, C; Howell, M; Raghunandan, R; Dalziel, K; Howard, K; Mulhern, B; Petrou, S; Rowen, D; Salisbury, A; Viney, R; Lancsar, E; Devlin, N

The RETRIEVE Checklist for Studies Reporting the Elicitation of Stated Preferences for Child Health-Related Quality of Life.

Bailey, C Howell, M Raghunandan, R Dalziel, K Howard, K Mulhern, B

Petrou, S Rowen, D Salisbury, A Viney, R

Lancsar, E Devlin, N

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Publisher:: ADIS INT LTD
Publication Type:: Journal Article
Citation:: Pharmacoeconomics, 2024, 42, (4), pp. 435-446
Issue Date:: 2024-04

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Field	Value	Language
dc.contributor.author	Bailey, C
dc.contributor.author	Howell, M
dc.contributor.author	Raghunandan, R
dc.contributor.author	Dalziel, K
dc.contributor.author	Howard, K
dc.contributor.author	Mulhern, B https://orcid.org/0000-0003-3656-8063
dc.contributor.author	Petrou, S
dc.contributor.author	Rowen, D
dc.contributor.author	Salisbury, A
dc.contributor.author	Viney, R https://orcid.org/0000-0002-0039-9635
dc.contributor.author	Lancsar, E
dc.contributor.author	Devlin, N
dc.date.accessioned	2024-09-23T04:00:49Z
dc.date.available	2023-10-25
dc.date.available	2024-09-23T04:00:49Z
dc.date.issued	2024-04
dc.identifier.citation	Pharmacoeconomics, 2024, 42, (4), pp. 435-446
dc.identifier.issn	1170-7690
dc.identifier.issn	1179-2027
dc.identifier.uri	http://hdl.handle.net/10453/180915
dc.description.abstract	BACKGROUND: Recent systematic reviews show varying methods for eliciting, modelling, and reporting preference-based values for child health-related quality-of-life (HRQoL) outcomes, thus producing value sets with different characteristics. Reporting in many of the reviewed studies was found to be incomplete and inconsistent, making them difficult to assess. Checklists can help to improve standards of reporting; however, existing checklists do not address methodological issues for valuing child HRQoL. Existing checklists also focus on reporting methods and processes used in developing HRQoL values, with less focus on reporting of the values' key characteristics and properties. We aimed to develop a checklist for studies generating values for child HRQoL, including for disease-specific states and value sets for generic child HRQoL instruments. DEVELOPMENT: A conceptual model provided a structure for grouping items into five modules. Potential items were sourced from an adult HRQoL checklist review, with additional items specific to children developed using recent reviews. Checklist items were reduced by eliminating duplication and overlap, then refined for relevance and clarity via an iterative process. Long and short checklist versions were produced for different user needs. The resulting long RETRIEVE contains 83 items, with modules for reporting methods (A-D) and characteristics of values (E), for researchers planning and reporting child health valuation studies. The short RETRIEVE contains 14 items for decision makers or researchers choosing value sets. CONCLUSION: Applying the RETRIEVE checklists to relevant studies suggests feasibility. RETRIEVE has the potential to improve completeness in the reporting of preference-based values for child HRQOL outcomes and to improve assessment of preference-based value sets.
dc.format	Print-Electronic
dc.language	eng
dc.publisher	ADIS INT LTD
dc.relation.ispartof	Pharmacoeconomics
dc.relation.isbasedon	10.1007/s40273-023-01333-z
dc.rights	info:eu-repo/semantics/openAccess
dc.subject	11 Medical and Health Sciences, 14 Economics
dc.subject.classification	Health Policy & Services
dc.subject.classification	3214 Pharmacology and pharmaceutical sciences
dc.subject.classification	3801 Applied economics
dc.subject.classification	4203 Health services and systems
dc.subject.mesh	Child
dc.subject.mesh	Adult
dc.subject.mesh	Humans
dc.subject.mesh	Checklist
dc.subject.mesh	Quality of Life
dc.subject.mesh	Research Design
dc.subject.mesh	Humans
dc.subject.mesh	Research Design
dc.subject.mesh	Quality of Life
dc.subject.mesh	Adult
dc.subject.mesh	Child
dc.subject.mesh	Checklist
dc.subject.mesh	Child
dc.subject.mesh	Adult
dc.subject.mesh	Humans
dc.subject.mesh	Checklist
dc.subject.mesh	Quality of Life
dc.subject.mesh	Research Design
dc.title	The RETRIEVE Checklist for Studies Reporting the Elicitation of Stated Preferences for Child Health-Related Quality of Life.
dc.type	Journal Article
utslib.citation.volume	42
utslib.location.activity	New Zealand
utslib.for	11 Medical and Health Sciences
utslib.for	14 Economics
pubs.organisational-group	University of Technology Sydney
pubs.organisational-group	University of Technology Sydney/Faculty of Health
pubs.organisational-group	University of Technology Sydney/Strength - CHERE - Centre for Health Economics Research and Evaluation
pubs.organisational-group	University of Technology Sydney/Faculty of Health/Research Centres/Centre for Health Economics Research and Evaluation
pubs.organisational-group	University of Technology Sydney/UTS Groups
pubs.organisational-group	University of Technology Sydney/UTS Groups/Centre for Health Economics Research and Evaluation (CHERE)
pubs.organisational-group	University of Technology Sydney/Faculty of Health/Research Centres
utslib.copyright.status	open_access	*
dc.rights.license	This work is licensed under a Creative Commons Attribution-NonCommercial 4.0 International License (CC BY-NC 4.0). To view a copy of this license, visit https://creativecommons.org/licenses/by-nc/4.0/
dc.date.updated	2024-09-23T04:00:47Z
pubs.issue	4
pubs.publication-status	Published
pubs.volume	42
utslib.citation.issue	4

Abstract:

BACKGROUND: Recent systematic reviews show varying methods for eliciting, modelling, and reporting preference-based values for child health-related quality-of-life (HRQoL) outcomes, thus producing value sets with different characteristics. Reporting in many of the reviewed studies was found to be incomplete and inconsistent, making them difficult to assess. Checklists can help to improve standards of reporting; however, existing checklists do not address methodological issues for valuing child HRQoL. Existing checklists also focus on reporting methods and processes used in developing HRQoL values, with less focus on reporting of the values' key characteristics and properties. We aimed to develop a checklist for studies generating values for child HRQoL, including for disease-specific states and value sets for generic child HRQoL instruments. DEVELOPMENT: A conceptual model provided a structure for grouping items into five modules. Potential items were sourced from an adult HRQoL checklist review, with additional items specific to children developed using recent reviews. Checklist items were reduced by eliminating duplication and overlap, then refined for relevance and clarity via an iterative process. Long and short checklist versions were produced for different user needs. The resulting long RETRIEVE contains 83 items, with modules for reporting methods (A-D) and characteristics of values (E), for researchers planning and reporting child health valuation studies. The short RETRIEVE contains 14 items for decision makers or researchers choosing value sets. CONCLUSION: Applying the RETRIEVE checklists to relevant studies suggests feasibility. RETRIEVE has the potential to improve completeness in the reporting of preference-based values for child HRQOL outcomes and to improve assessment of preference-based value sets.

Please use this identifier to cite or link to this item:

http://hdl.handle.net/10453/180915