Driving quality in delirium care through a patient-centered monitoring system in palliative care: Protocol for the two-staged exploratory sequential mixed methods MODEL-PC study

van Oosterom, N; Agar, MR; Walpole, G; Casey, P; Moffat, P; Bradley, K; Cook, A; Johnson, C; Chye, R; Oehme, J; Senatore, M; Virdun, C; Pearson, M; Featherstone, I; Lawlor, PG; Bush, SH; Daveson, B; Clapham, S; Campbell, K; Hosie, A

Driving quality in delirium care through a patient-centered monitoring system in palliative care: Protocol for the two-staged exploratory sequential mixed methods MODEL-PC study

van Oosterom, N Agar, MR Walpole, G Casey, P Moffat, P Bradley, K Cook, A Johnson, C Chye, R Oehme, J Senatore, M Virdun, C

Pearson, M Featherstone, I Lawlor, PG Bush, SH Daveson, B Clapham, S Campbell, K

Hosie, A

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Publisher:: European Delirium Association
Publication Type:: Journal Article
Citation:: Delirium Communications

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Field	Value	Language
dc.contributor.author	van Oosterom, N
dc.contributor.author	Agar, MR
dc.contributor.author	Walpole, G
dc.contributor.author	Casey, P
dc.contributor.author	Moffat, P
dc.contributor.author	Bradley, K
dc.contributor.author	Cook, A
dc.contributor.author	Johnson, C
dc.contributor.author	Chye, R
dc.contributor.author	Oehme, J
dc.contributor.author	Senatore, M
dc.contributor.author	Virdun, C https://orcid.org/0000-0003-3945-0749
dc.contributor.author	Pearson, M
dc.contributor.author	Featherstone, I
dc.contributor.author	Lawlor, PG
dc.contributor.author	Bush, SH
dc.contributor.author	Daveson, B
dc.contributor.author	Clapham, S
dc.contributor.author	Campbell, K https://orcid.org/0000-0002-9656-7823
dc.contributor.author	Hosie, A https://orcid.org/0000-0003-1674-2124
dc.date.accessioned	2024-09-30T02:07:46Z
dc.date.available	2024-09-30T02:07:46Z
dc.identifier.citation	Delirium Communications
dc.identifier.issn	2959-104X
dc.identifier.issn	2959-104X
dc.identifier.uri	http://hdl.handle.net/10453/181075
dc.description.abstract	<jats:p><jats:bold>Introduction</jats:bold> Delirium is a serious acute neurocognitive condition that is common in palliative care units and yet under-addressed. To improve delirium care in this setting, we will develop and pilot a monitoring system that integrates the Delirium Clinical Care Standard, Palliative Care Outcomes Collaboration (PCOC) methods, and perspectives of patients, carers and staff.</jats:p> <jats:p><jats:bold>Methods</jats:bold> This paper reports the protocol for a two-stage, exploratory, sequential mixed-methods implementation study. Stage 1 data collection includes Delirium Standard-aligned process mapping and clinical audits, and Critical Incident Technique interviews with patients, carers and staff with a recent experience of delirium. We will present integrated stage 1 findings to stakeholders then collaboratively develop a delirium monitoring system that aligns with the Delirium Standard and PCOC methods. In stage 2, we will pilot the new system and repeat stage 1 data collection and analyses, adding PCOC and adverse event measures. Implementation principles and strategies such as audit and feedback and education will be applied. We developed simplified participants information sheets and consent forms for interview and process mapping participants, who will provide written informed consent; and waiver of consent to collect clinical audit, PCOC and adverse event data from patients’ medical records is approved. At study end, we will report implementation, effectiveness and safety outcomes, including systemic utility of the delirium monitoring system for wider testing and use to meet the Delirium Standard in palliative care units. Quantitative data analyses will include descriptive and inferential statistics and qualitative analyses will incorporate thematic content analysis aligned to the Critical Incident Technique. Mixed methods data integration will be at the end of each stage.</jats:p> <jats:p><jats:bold>Discussion</jats:bold> This protocol paper describes the mixed methods, systems integration, and innovative measures and study processes of the MODEL-PC study. We also share data collection tools and a simplified information sheet and consent form for patients.</jats:p>
dc.language	en
dc.publisher	European Delirium Association
dc.relation.ispartof	Delirium Communications
dc.relation.isbasedon	10.56392/001c.94808
dc.rights	info:eu-repo/semantics/openAccess
dc.title	Driving quality in delirium care through a patient-centered monitoring system in palliative care: Protocol for the two-staged exploratory sequential mixed methods MODEL-PC study
dc.type	Journal Article
pubs.organisational-group	University of Technology Sydney
pubs.organisational-group	University of Technology Sydney/Faculty of Health
pubs.organisational-group	University of Technology Sydney/Strength - CHSP - Health Services and Practice
pubs.organisational-group	University of Technology Sydney/Faculty of Health/Research Centres/IMPACCT
pubs.organisational-group	University of Technology Sydney/UTS Groups
pubs.organisational-group	University of Technology Sydney/UTS Groups/Improving Palliative, Aged and Chronic Care through Clinical Research and Translation (IMPACCT)
pubs.organisational-group	University of Technology Sydney/Faculty of Health/Research Centres
utslib.copyright.status	open_access	*
dc.rights.license	This work is licensed under a Creative Commons Attribution 4.0 International License (CC BY 4.0). To view a copy of this license, visit https://creativecommons.org/licenses/by/4.0/
dc.date.updated	2024-09-30T02:07:44Z
pubs.publication-status	Published online

Abstract:

Introduction Delirium is a serious acute neurocognitive condition that is common in palliative care units and yet under-addressed. To improve delirium care in this setting, we will develop and pilot a monitoring system that integrates the Delirium Clinical Care Standard, Palliative Care Outcomes Collaboration (PCOC) methods, and perspectives of patients, carers and staff. Methods This paper reports the protocol for a two-stage, exploratory, sequential mixed-methods implementation study. Stage 1 data collection includes Delirium Standard-aligned process mapping and clinical audits, and Critical Incident Technique interviews with patients, carers and staff with a recent experience of delirium. We will present integrated stage 1 findings to stakeholders then collaboratively develop a delirium monitoring system that aligns with the Delirium Standard and PCOC methods. In stage 2, we will pilot the new system and repeat stage 1 data collection and analyses, adding PCOC and adverse event measures. Implementation principles and strategies such as audit and feedback and education will be applied. We developed simplified participants information sheets and consent forms for interview and process mapping participants, who will provide written informed consent; and waiver of consent to collect clinical audit, PCOC and adverse event data from patients’ medical records is approved. At study end, we will report implementation, effectiveness and safety outcomes, including systemic utility of the delirium monitoring system for wider testing and use to meet the Delirium Standard in palliative care units. Quantitative data analyses will include descriptive and inferential statistics and qualitative analyses will incorporate thematic content analysis aligned to the Critical Incident Technique. Mixed methods data integration will be at the end of each stage. Discussion This protocol paper describes the mixed methods, systems integration, and innovative measures and study processes of the MODEL-PC study. We also share data collection tools and a simplified information sheet and consent form for patients.

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http://hdl.handle.net/10453/181075