"Beyond Feasibility": A Qualitative Study of Patients, Their Whānau (Family) and Staff Perspectives and Experiences of a Non- Pharmacological Delirium-Prevention Intervention in Two Aotearoa/New Zealand Hospices.

Davies, C; Basire, K; Jones, V; Gillmore, D; Hosie, A; Gourley, A; Collier, A

"Beyond Feasibility": A Qualitative Study of Patients, Their Whānau (Family) and Staff Perspectives and Experiences of a Non- Pharmacological Delirium-Prevention Intervention in Two Aotearoa/New Zealand Hospices.

Davies, C Basire, K Jones, V Gillmore, D Hosie, A

Gourley, A Collier, A

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Publisher:: Elsevier
Publication Type:: Journal Article
Citation:: J Pain Symptom Manage, 2024, 67, (4), pp. 327-336.e2
Issue Date:: 2024-04

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Field	Value	Language
dc.contributor.author	Davies, C
dc.contributor.author	Basire, K
dc.contributor.author	Jones, V
dc.contributor.author	Gillmore, D
dc.contributor.author	Hosie, A https://orcid.org/0000-0003-1674-2124
dc.contributor.author	Gourley, A
dc.contributor.author	Collier, A
dc.date.accessioned	2024-10-07T22:20:19Z
dc.date.available	2024-01-07
dc.date.available	2024-10-07T22:20:19Z
dc.date.issued	2024-04
dc.identifier.citation	J Pain Symptom Manage, 2024, 67, (4), pp. 327-336.e2
dc.identifier.issn	0885-3924
dc.identifier.issn	1873-6513
dc.identifier.uri	http://hdl.handle.net/10453/181211
dc.description.abstract	CONTEXT: Delirium is prevalent in the hospice population. Despite causing significant distress to patients and families, delirium is under-recognised. There is a need to better understand delirium prevention and outcomes in this population including people's experiences of delirium-prevention strategies in different cultural contexts. OBJECTIVES: To determine whether the "PRESERVE Aotearoa" delirium prevention intervention was feasible and acceptable for Māori (indigenous peoples of Aotearoa/ New Zealand) and non-Māori patients with advanced cancer, their families (called whānau in this paper), and clinical staff. METHODS: A qualitative semistructured interview substudy of a cohort PRESERVE Aotearoa feasibility study codesigned with a Māori partner to ensure inclusion of Māori-centred values. The study was underpinned conceptually by He Awa Whiria (braided rivers)-combining Western and Māori knowledges. Data were analysed using Hopwood and Srivasta's framework. RESULTS: Twenty-six patients and their whānau, 21 clinical staff and five researchers from two stand-alone hospices in the North Island, Aotearoa/New Zealand. Finding showed that, for the most part, participants considered the study interventions feasible and acceptable. Inductive analysis resulted in four themes highlighting the importance to whānau of their participation in the study: benefits of learning about delirium; the affirmation of the caregiver role and whānau-centred care; valuing fundamentals of care; and research as legacy. CONCLUSION: This qualitative study found that it is feasible and acceptable to study multicomponent nonpharmacological delirium-prevention interventions in Aotearoa/New Zealand hospice inpatient units. The study also highlights the value of Māori-centred approaches and whānau involvement in these settings.
dc.format	Print-Electronic
dc.language	eng
dc.publisher	Elsevier
dc.relation.ispartof	J Pain Symptom Manage
dc.relation.isbasedon	10.1016/j.jpainsymman.2024.01.012
dc.rights	info:eu-repo/semantics/openAccess
dc.subject	11 Medical and Health Sciences
dc.subject.classification	Anesthesiology
dc.subject.classification	32 Biomedical and clinical sciences
dc.subject.classification	42 Health sciences
dc.subject.mesh	Humans
dc.subject.mesh	Male
dc.subject.mesh	Delirium
dc.subject.mesh	Feasibility Studies
dc.subject.mesh	Hospices
dc.subject.mesh	Maori People
dc.subject.mesh	New Zealand
dc.subject.mesh	Humans
dc.subject.mesh	Delirium
dc.subject.mesh	Feasibility Studies
dc.subject.mesh	Hospices
dc.subject.mesh	New Zealand
dc.subject.mesh	Male
dc.subject.mesh	Maori People
dc.subject.mesh	Humans
dc.subject.mesh	Male
dc.subject.mesh	Delirium
dc.subject.mesh	Feasibility Studies
dc.subject.mesh	Hospices
dc.subject.mesh	Maori People
dc.subject.mesh	New Zealand
dc.title	"Beyond Feasibility": A Qualitative Study of Patients, Their Whānau (Family) and Staff Perspectives and Experiences of a Non- Pharmacological Delirium-Prevention Intervention in Two Aotearoa/New Zealand Hospices.
dc.type	Journal Article
utslib.citation.volume	67
utslib.location.activity	United States
utslib.for	11 Medical and Health Sciences
pubs.organisational-group	University of Technology Sydney
pubs.organisational-group	University of Technology Sydney/Faculty of Health
utslib.copyright.status	open_access	*
dc.rights.license	This work is licensed under a Creative Commons Attribution 4.0 International License (CC BY 4.0). To view a copy of this license, visit https://creativecommons.org/licenses/by/4.0/
dc.date.updated	2024-10-07T22:20:17Z
pubs.issue	4
pubs.publication-status	Published
pubs.volume	67
utslib.citation.issue	4

Abstract:

CONTEXT: Delirium is prevalent in the hospice population. Despite causing significant distress to patients and families, delirium is under-recognised. There is a need to better understand delirium prevention and outcomes in this population including people's experiences of delirium-prevention strategies in different cultural contexts. OBJECTIVES: To determine whether the "PRESERVE Aotearoa" delirium prevention intervention was feasible and acceptable for Māori (indigenous peoples of Aotearoa/ New Zealand) and non-Māori patients with advanced cancer, their families (called whānau in this paper), and clinical staff. METHODS: A qualitative semistructured interview substudy of a cohort PRESERVE Aotearoa feasibility study codesigned with a Māori partner to ensure inclusion of Māori-centred values. The study was underpinned conceptually by He Awa Whiria (braided rivers)-combining Western and Māori knowledges. Data were analysed using Hopwood and Srivasta's framework. RESULTS: Twenty-six patients and their whānau, 21 clinical staff and five researchers from two stand-alone hospices in the North Island, Aotearoa/New Zealand. Finding showed that, for the most part, participants considered the study interventions feasible and acceptable. Inductive analysis resulted in four themes highlighting the importance to whānau of their participation in the study: benefits of learning about delirium; the affirmation of the caregiver role and whānau-centred care; valuing fundamentals of care; and research as legacy. CONCLUSION: This qualitative study found that it is feasible and acceptable to study multicomponent nonpharmacological delirium-prevention interventions in Aotearoa/New Zealand hospice inpatient units. The study also highlights the value of Māori-centred approaches and whānau involvement in these settings.

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http://hdl.handle.net/10453/181211