Breathlessness without borders: a call to action for global breathlessness research.

Clark, JD; Binnie, K; Bond, M; Crooks, M; Currow, DC; Curry, J; Elsey, H; Habib, M; Hutchinson, A; Soyiri, I; Johnson, MJ; Nair, S; Rao, S; Siqueira-Filha, N; Spathis, A; Williams, S

Breathlessness without borders: a call to action for global breathlessness research.

Clark, JD Binnie, K Bond, M Crooks, M Currow, DC Curry, J Elsey, H Habib, M Hutchinson, A Soyiri, I Johnson, MJ Nair, S Rao, S Siqueira-Filha, N Spathis, A Williams, S

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Publisher:: Springer Science and Business Media LLC
Publication Type:: Journal Article
Citation:: NPJ Prim Care Respir Med, 2024, 34, (1), pp. 26
Issue Date:: 2024-09-30

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Field	Value	Language
dc.contributor.author	Clark, JD
dc.contributor.author	Binnie, K
dc.contributor.author	Bond, M
dc.contributor.author	Crooks, M
dc.contributor.author	Currow, DC
dc.contributor.author	Curry, J
dc.contributor.author	Elsey, H
dc.contributor.author	Habib, M
dc.contributor.author	Hutchinson, A
dc.contributor.author	Soyiri, I
dc.contributor.author	Johnson, MJ
dc.contributor.author	Nair, S
dc.contributor.author	Rao, S
dc.contributor.author	Siqueira-Filha, N
dc.contributor.author	Spathis, A
dc.contributor.author	Williams, S
dc.date.accessioned	2024-10-08T03:35:35Z
dc.date.available	2024-09-13
dc.date.available	2024-10-08T03:35:35Z
dc.date.issued	2024-09-30
dc.identifier.citation	NPJ Prim Care Respir Med, 2024, 34, (1), pp. 26
dc.identifier.issn	2055-1010
dc.identifier.issn	2055-1010
dc.identifier.uri	http://hdl.handle.net/10453/181236
dc.description.abstract	It is likely that the burden of breathlessness in low and middle-income countries (LMICs) is much higher than has been estimated using calculations of disease burden and expected prevalence of the symptom. However, most breathlessness research has been conducted in high-income countries and may not be relevant to LMICs. To address this issue, we convened an international breathlessness and global health workshop. Our multidisciplinary team of experts (global palliative care, respiratory medicine, epidemiology, palliative medicine, psychiatry, sport science, global public health and health economics) met at the University of Hull for a two-day workshop in May 2024. We had 8 presentations on key issues relevant to global breathlessness research. Our discussions focussed on unexplored questions and links between breathlessness and other health and social issues, in order to develop an agenda for global breathlessness research. Our discussions highlighted (1) the global burden of breathlessness generated by a range of lifestyle, environmental, disease and poverty-related factors, (2) the need for a global healthcare workforce that can address modifiable causes and the symptoms of breathlessness together using an integrated approach, (3) the value of information over clinical effectiveness when considering implementation of breathlessness self-management interventions, (4) Addressing non-clinical outcomes which are meaningful to individuals and families and (5) Developing a language for global breathlessness research which does not assume that the cause of breathlessness is diagnosed or treated. We present our discussions and recommendations for new approaches and paradigms for global breathlessness research to generate discussion—not to provide empirical evidence.
dc.format	Electronic
dc.language	eng
dc.publisher	Springer Science and Business Media LLC
dc.relation.ispartof	NPJ Prim Care Respir Med
dc.relation.isbasedon	10.1038/s41533-024-00384-9
dc.rights	info:eu-repo/semantics/openAccess
dc.subject.mesh	Humans
dc.subject.mesh	Dyspnea
dc.subject.mesh	Global Health
dc.subject.mesh	Biomedical Research
dc.subject.mesh	Humans
dc.subject.mesh	Dyspnea
dc.subject.mesh	Biomedical Research
dc.subject.mesh	Global Health
dc.title	Breathlessness without borders: a call to action for global breathlessness research.
dc.type	Journal Article
utslib.citation.volume	34
utslib.location.activity	England
pubs.organisational-group	University of Technology Sydney
pubs.organisational-group	University of Technology Sydney/Faculty of Health
utslib.copyright.status	open_access	*
dc.rights.license	This work is licensed under a Creative Commons Attribution 4.0 International License (CC BY 4.0). To view a copy of this license, visit https://creativecommons.org/licenses/by/4.0/
dc.date.updated	2024-10-08T03:35:33Z
pubs.issue	1
pubs.publication-status	Published online
pubs.volume	34
utslib.citation.issue	1

Abstract:

It is likely that the burden of breathlessness in low and middle-income countries (LMICs) is much higher than has been estimated using calculations of disease burden and expected prevalence of the symptom. However, most breathlessness research has been conducted in high-income countries and may not be relevant to LMICs. To address this issue, we convened an international breathlessness and global health workshop. Our multidisciplinary team of experts (global palliative care, respiratory medicine, epidemiology, palliative medicine, psychiatry, sport science, global public health and health economics) met at the University of Hull for a two-day workshop in May 2024. We had 8 presentations on key issues relevant to global breathlessness research. Our discussions focussed on unexplored questions and links between breathlessness and other health and social issues, in order to develop an agenda for global breathlessness research. Our discussions highlighted (1) the global burden of breathlessness generated by a range of lifestyle, environmental, disease and poverty-related factors, (2) the need for a global healthcare workforce that can address modifiable causes and the symptoms of breathlessness together using an integrated approach, (3) the value of information over clinical effectiveness when considering implementation of breathlessness self-management interventions, (4) Addressing non-clinical outcomes which are meaningful to individuals and families and (5) Developing a language for global breathlessness research which does not assume that the cause of breathlessness is diagnosed or treated. We present our discussions and recommendations for new approaches and paradigms for global breathlessness research to generate discussion—not to provide empirical evidence.

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http://hdl.handle.net/10453/181236