A Comparison of the Psychometric Properties of the EQ-5D-Y-3L and EQ-5D-Y-5L Using Paediatric Multi-Instrument Comparison (P-MIC) Study Data.

Bahrampour, M; Devlin, N; Jones, R; Dalziel, K; Mulhern, B; On behalf of the QUOKKA (Quality of Life in Kids: Key Evidence for Decision Makers in Australia) Team,

A Comparison of the Psychometric Properties of the EQ-5D-Y-3L and EQ-5D-Y-5L Using Paediatric Multi-Instrument Comparison (P-MIC) Study Data.

Bahrampour, M

Devlin, N Jones, R Dalziel, K Mulhern, B

On behalf of the QUOKKA (Quality of Life in Kids: Key Evidence for Decision Makers in Australia) Team,

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Publisher:: ADIS INT LTD
Publication Type:: Journal Article
Citation:: Pharmacoeconomics, 2024, 42, (Suppl 1), pp. 95-111
Issue Date:: 2024-06

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Field	Value	Language
dc.contributor.author	Bahrampour, M https://orcid.org/0000-0002-6915-1865
dc.contributor.author	Devlin, N
dc.contributor.author	Jones, R
dc.contributor.author	Dalziel, K
dc.contributor.author	Mulhern, B https://orcid.org/0000-0003-3656-8063
dc.contributor.author	On behalf of the QUOKKA (Quality of Life in Kids: Key Evidence for Decision Makers in Australia) Team,
dc.date.accessioned	2024-10-08T22:18:08Z
dc.date.available	2024-03-26
dc.date.available	2024-10-08T22:18:08Z
dc.date.issued	2024-06
dc.identifier.citation	Pharmacoeconomics, 2024, 42, (Suppl 1), pp. 95-111
dc.identifier.issn	1170-7690
dc.identifier.issn	1179-2027
dc.identifier.uri	http://hdl.handle.net/10453/181247
dc.description.abstract	BACKGROUND: The EQ-5D-Y is a generic health-related quality of life (HRQoL) measure suitable for children and adolescents. There are two versions of the instrument, which differ in response levels: the three- (Y-3L) and five-level (Y-5L) versions. The Y-5L has been developed to improve the psychometric performance of the Y-3L. OBJECTIVE: This study aims to assess the psychometric properties of Y-5L and to compare the performance of Y-5L with Y-3L in separate self- and proxy-reported samples. METHODS: Both versions of the instrument were administered to children/adolescents (self-report) or caregivers (proxy-report) of Australian children aged 5-18 years. The data were gathered as part of the Australian Paediatric Multi-Instrument Comparison (P-MIC) study. The Y-5L and Y-3L were evaluated in terms of ceiling effects, criterion validity, inconsistency, informativity, and test-retest reliability in both proxy and self-complete populations. RESULTS: Overall, 5945 respondents completed both the Y-3L and Y-5L, with 2083 proxy and 3862 self-completed responses. Ceiling effects were lower in the Y-5L than the Y-3L. Items from the same domains show the strongest correlation for both samples. Regarding informativity, the Y-5L demonstrated more discriminatory power, indicated by having a higher Shannon diversity index in all domains of the Y-5L compared with the Y-3L. Test-retest showed fair agreement between responses at baseline and follow-up. CONCLUSION: The Y-5L has demonstrated moderate validity and fair reliability for use in measuring HRQoL in children and adolescents, both when self-reported by children or proxy reported. Overall, Y-5L is a dependable and valid extension from the Y-3L.
dc.format	Print-Electronic
dc.language	eng
dc.publisher	ADIS INT LTD
dc.relation.ispartof	Pharmacoeconomics
dc.relation.isbasedon	10.1007/s40273-024-01379-7
dc.rights	info:eu-repo/semantics/openAccess
dc.subject	11 Medical and Health Sciences, 14 Economics
dc.subject.classification	Health Policy & Services
dc.subject.classification	3214 Pharmacology and pharmaceutical sciences
dc.subject.classification	3801 Applied economics
dc.subject.classification	4203 Health services and systems
dc.subject.mesh	Humans
dc.subject.mesh	Child
dc.subject.mesh	Psychometrics
dc.subject.mesh	Adolescent
dc.subject.mesh	Quality of Life
dc.subject.mesh	Female
dc.subject.mesh	Australia
dc.subject.mesh	Male
dc.subject.mesh	Reproducibility of Results
dc.subject.mesh	Child, Preschool
dc.subject.mesh	Surveys and Questionnaires
dc.subject.mesh	Self Report
dc.subject.mesh	Health Status
dc.subject.mesh	Caregivers
dc.subject.mesh	Proxy
dc.subject.mesh	Humans
dc.subject.mesh	Reproducibility of Results
dc.subject.mesh	Psychometrics
dc.subject.mesh	Health Status
dc.subject.mesh	Quality of Life
dc.subject.mesh	Adolescent
dc.subject.mesh	Child
dc.subject.mesh	Child, Preschool
dc.subject.mesh	Caregivers
dc.subject.mesh	Proxy
dc.subject.mesh	Australia
dc.subject.mesh	Female
dc.subject.mesh	Male
dc.subject.mesh	Self Report
dc.subject.mesh	Surveys and Questionnaires
dc.subject.mesh	Humans
dc.subject.mesh	Child
dc.subject.mesh	Psychometrics
dc.subject.mesh	Adolescent
dc.subject.mesh	Quality of Life
dc.subject.mesh	Female
dc.subject.mesh	Australia
dc.subject.mesh	Male
dc.subject.mesh	Reproducibility of Results
dc.subject.mesh	Child, Preschool
dc.subject.mesh	Surveys and Questionnaires
dc.subject.mesh	Self Report
dc.subject.mesh	Health Status
dc.subject.mesh	Caregivers
dc.subject.mesh	Proxy
dc.title	A Comparison of the Psychometric Properties of the EQ-5D-Y-3L and EQ-5D-Y-5L Using Paediatric Multi-Instrument Comparison (P-MIC) Study Data.
dc.type	Journal Article
utslib.citation.volume	42
utslib.location.activity	New Zealand
utslib.for	11 Medical and Health Sciences
utslib.for	14 Economics
pubs.organisational-group	University of Technology Sydney
pubs.organisational-group	University of Technology Sydney/Faculty of Health
pubs.organisational-group	University of Technology Sydney/UTS Groups
pubs.organisational-group	University of Technology Sydney/UTS Groups/Centre for Health Economics Research and Evaluation (CHERE)
utslib.copyright.status	open_access	*
dc.rights.license	This work is licensed under a Creative Commons Attribution-NonCommercial 4.0 International License (CC BY-NC 4.0). To view a copy of this license, visit https://creativecommons.org/licenses/by-nc/4.0/
dc.date.updated	2024-10-08T22:18:07Z
pubs.issue	Suppl 1
pubs.publication-status	Published
pubs.volume	42
utslib.citation.issue	Suppl 1

Abstract:

BACKGROUND: The EQ-5D-Y is a generic health-related quality of life (HRQoL) measure suitable for children and adolescents. There are two versions of the instrument, which differ in response levels: the three- (Y-3L) and five-level (Y-5L) versions. The Y-5L has been developed to improve the psychometric performance of the Y-3L. OBJECTIVE: This study aims to assess the psychometric properties of Y-5L and to compare the performance of Y-5L with Y-3L in separate self- and proxy-reported samples. METHODS: Both versions of the instrument were administered to children/adolescents (self-report) or caregivers (proxy-report) of Australian children aged 5-18 years. The data were gathered as part of the Australian Paediatric Multi-Instrument Comparison (P-MIC) study. The Y-5L and Y-3L were evaluated in terms of ceiling effects, criterion validity, inconsistency, informativity, and test-retest reliability in both proxy and self-complete populations. RESULTS: Overall, 5945 respondents completed both the Y-3L and Y-5L, with 2083 proxy and 3862 self-completed responses. Ceiling effects were lower in the Y-5L than the Y-3L. Items from the same domains show the strongest correlation for both samples. Regarding informativity, the Y-5L demonstrated more discriminatory power, indicated by having a higher Shannon diversity index in all domains of the Y-5L compared with the Y-3L. Test-retest showed fair agreement between responses at baseline and follow-up. CONCLUSION: The Y-5L has demonstrated moderate validity and fair reliability for use in measuring HRQoL in children and adolescents, both when self-reported by children or proxy reported. Overall, Y-5L is a dependable and valid extension from the Y-3L.

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http://hdl.handle.net/10453/181247