"They feel shame sometime, but that is why we need to talk to them…we need to tell them how important it is not to feel shame": Hepatitis B related shame and improving hepatitis B care in Aboriginal and Torres Strait Islander communities in the Top End of the Northern Territory, according to the Aboriginal health workforce.

Sullivan, RP Bukulatjpi, SM Binks, P Hosking, K Nundhirribala, P Vintour-Cesar, E McKinnon, M Gurruwiwi, G Green, A Davis, JS Davies, J

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Field	Value	Language
dc.contributor.author	Sullivan, RP
dc.contributor.author	Bukulatjpi, SM
dc.contributor.author	Binks, P
dc.contributor.author	Hosking, K
dc.contributor.author	Nundhirribala, P
dc.contributor.author	Vintour-Cesar, E
dc.contributor.author	McKinnon, M
dc.contributor.author	Gurruwiwi, G
dc.contributor.author	Green, A https://orcid.org/0000-0002-7541-3665
dc.contributor.author	Davis, JS
dc.contributor.author	Davies, J
dc.date.accessioned	2024-12-02T00:57:04Z
dc.date.available	2024-08-31
dc.date.available	2024-12-02T00:57:04Z
dc.date.issued	2024-09-11
dc.identifier.citation	Arch Public Health, 2024, 82, (1), pp. 151
dc.identifier.issn	0778-7367
dc.identifier.issn	2049-3258
dc.identifier.uri	http://hdl.handle.net/10453/182186
dc.description.abstract	BACKGROUND: The Aboriginal health workforce has unique insights given their healthcare experience and interactions with their communities. The aims of this project were to explore their perceptions of hepatitis B related shame and ways to improve hepatitis B care in Aboriginal and Torres Strait Islander communities of Northern Territory's Top End, Australia. METHODS: We conducted a qualitative study with guidance from the Menzies School of Health Research Infectious Diseases Indigenous Reference Group. The Aboriginal health workforce was asked to participate in semi-structured interviews exploring hepatitis B related shame and ways to improve hepatitis B care. Qualitative data were evaluated using reflexive thematic analysis. RESULTS: There were fifteen semi-structured interviews with participants representing eight different communities. The experience of shame was reported by the Aboriginal health workforce to be common for individuals diagnosed with hepatitis B and comprised feelings of fear related to transmitting the virus, to being isolated, and to being at fault. Shame was mediated by poor health literacy, communication, the lack of culturally safe spaces and was perpetuated by intersecting stereotypes. Improvements in care can be achieved by utilising the Aboriginal health workforce more effectively, improving communication and the availability of culturally safe spaces, emphasising community connection, and reframing hepatitis B as a chronic condition. CONCLUSIONS: Hepatitis B related shame was an important issue and impactful in Aboriginal and Torres Strait Islander communities in the Top End of the Northern Territory. There were many facets to shame in these communities and it was mediated by several factors. The Aboriginal health workforce has emphasised several pathways to improve care and diminish the impact of shame, such as improving communication and the availability of culturally safe spaces.
dc.format	Electronic
dc.language	eng
dc.publisher	BMC
dc.relation.ispartof	Arch Public Health
dc.relation.isbasedon	10.1186/s13690-024-01389-z
dc.rights	info:eu-repo/semantics/openAccess
dc.subject	1117 Public Health and Health Services
dc.subject.classification	Public Health
dc.subject.classification	4202 Epidemiology
dc.subject.classification	4204 Midwifery
dc.subject.classification	4206 Public health
dc.title	"They feel shame sometime, but that is why we need to talk to them…we need to tell them how important it is not to feel shame": Hepatitis B related shame and improving hepatitis B care in Aboriginal and Torres Strait Islander communities in the Top End of the Northern Territory, according to the Aboriginal health workforce.
dc.type	Journal Article
utslib.citation.volume	82
utslib.location.activity	England
utslib.for	1117 Public Health and Health Services
pubs.organisational-group	University of Technology Sydney
pubs.organisational-group	University of Technology Sydney/Faculty of Health
pubs.organisational-group	University of Technology Sydney/UTS Groups
pubs.organisational-group	University of Technology Sydney/UTS Groups/Improving Palliative, Aged and Chronic Care through Clinical Research and Translation (IMPACCT)
utslib.copyright.status	open_access	*
dc.rights.license	This work is licensed under a Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 International License (CC BY-NC-ND 4.0). To view a copy of this license, visit https://creativecommons.org/licenses/by-nc-nd/4.0/
dc.date.updated	2024-12-02T00:57:01Z
pubs.issue	1
pubs.publication-status	Published online
pubs.volume	82
utslib.citation.issue	1