Colorectal cancer survivors' experiences and views of shared and telehealth models of survivorship care: A qualitative study.

Gore, C; Lisy, K; O'Callaghan, C; Wood, C; Emery, J; Martin, A; De Abreu Lourenco, R; Schofield, P; Jefford, M

Colorectal cancer survivors' experiences and views of shared and telehealth models of survivorship care: A qualitative study.

Gore, C Lisy, K O'Callaghan, C Wood, C Emery, J Martin, A De Abreu Lourenco, R

Schofield, P Jefford, M

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Publisher:: WILEY
Publication Type:: Journal Article
Citation:: Psychooncology, 2024, 33, (1), pp. e6265
Issue Date:: 2024-01

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Field	Value	Language
dc.contributor.author	Gore, C
dc.contributor.author	Lisy, K
dc.contributor.author	O'Callaghan, C
dc.contributor.author	Wood, C
dc.contributor.author	Emery, J
dc.contributor.author	Martin, A
dc.contributor.author	De Abreu Lourenco, R https://orcid.org/0000-0002-5978-8774
dc.contributor.author	Schofield, P
dc.contributor.author	Jefford, M
dc.date.accessioned	2025-02-07T04:48:52Z
dc.date.available	2023-11-26
dc.date.available	2025-02-07T04:48:52Z
dc.date.issued	2024-01
dc.identifier.citation	Psychooncology, 2024, 33, (1), pp. e6265
dc.identifier.issn	1057-9249
dc.identifier.issn	1099-1611
dc.identifier.uri	http://hdl.handle.net/10453/185029
dc.description.abstract	OBJECTIVES: The number of colorectal cancer (CRC) survivors is increasing and current models of survivorship care are unsustainable. There is a drive to implement alternative models of care including shared care between general practitioners (GPs) and hospital-based providers. The primary objective of this study was to explore perspectives on facilitators and barriers to shared care. The secondary objective was to explore experiences of telehealth-delivered care. METHOD: Qualitative data were collected via semi-structured interviews with participants in the Shared Care for Colorectal Cancer Survivors (SCORE) randomised controlled trial. Interviews explored patient experiences of usual and shared survivorship care during the SCORE trial. In response to the COVID pandemic, participant experiences of telehealth appointments were also explored. Interviews were recorded and transcribed for thematic analysis. RESULTS: Twenty survivors of CRC were interviewed with an even number in the shared and usual care arms; 14 (70%) were male. Facilitators to shared care included: good relationships with GPs; convenience of GPs; good communication between providers; desire to reduce public health system pressures. Barriers included: poor communication between clinicians; inaccessibility of GPs; beliefs about GP capacity; and a preference for follow-up care with the hospital after positive treatment experiences. Participants also commonly expressed a preference for telehealth-based follow-up when there was no need for a clinical examination. CONCLUSIONS: This is one of few studies that have explored patient experiences with shared and telehealth-based survivorship care. Findings can guide the implementation of these models, particularly around care coordination, communication, preparation, and personalised pathways of care.
dc.format	Print-Electronic
dc.language	eng
dc.publisher	WILEY
dc.relation.ispartof	Psychooncology
dc.relation.isbasedon	10.1002/pon.6265
dc.rights	info:eu-repo/semantics/openAccess
dc.subject	1103 Clinical Sciences, 1112 Oncology and Carcinogenesis, 1701 Psychology
dc.subject.classification	Oncology & Carcinogenesis
dc.subject.classification	32 Biomedical and clinical sciences
dc.subject.classification	52 Psychology
dc.subject.mesh	Female
dc.subject.mesh	Humans
dc.subject.mesh	Male
dc.subject.mesh	Cancer Survivors
dc.subject.mesh	Colorectal Neoplasms
dc.subject.mesh	Survivors
dc.subject.mesh	Survivorship
dc.subject.mesh	Telemedicine
dc.subject.mesh	Qualitative Research
dc.subject.mesh	Randomized Controlled Trials as Topic
dc.subject.mesh	Humans
dc.subject.mesh	Colorectal Neoplasms
dc.subject.mesh	Telemedicine
dc.subject.mesh	Qualitative Research
dc.subject.mesh	Survivors
dc.subject.mesh	Female
dc.subject.mesh	Male
dc.subject.mesh	Randomized Controlled Trials as Topic
dc.subject.mesh	Cancer Survivors
dc.subject.mesh	Survivorship
dc.subject.mesh	Female
dc.subject.mesh	Humans
dc.subject.mesh	Male
dc.subject.mesh	Cancer Survivors
dc.subject.mesh	Colorectal Neoplasms
dc.subject.mesh	Survivors
dc.subject.mesh	Survivorship
dc.subject.mesh	Telemedicine
dc.subject.mesh	Qualitative Research
dc.subject.mesh	Randomized Controlled Trials as Topic
dc.title	Colorectal cancer survivors' experiences and views of shared and telehealth models of survivorship care: A qualitative study.
dc.type	Journal Article
utslib.citation.volume	33
utslib.location.activity	England
utslib.for	1103 Clinical Sciences
utslib.for	1112 Oncology and Carcinogenesis
utslib.for	1701 Psychology
pubs.organisational-group	University of Technology Sydney
pubs.organisational-group	University of Technology Sydney/Faculty of Health
pubs.organisational-group	University of Technology Sydney/UTS Groups
pubs.organisational-group	University of Technology Sydney/UTS Groups/INSIGHT: Institute for Innovative Solutions for Well-being and Health/Centre for Health Economics Research and Evaluation (CHERE)
pubs.organisational-group	University of Technology Sydney/UTS Groups/INSIGHT: Institute for Innovative Solutions for Well-being and Health
pubs.organisational-group	University of Technology Sydney/UTS Groups/Centre for Health Technologies (CHT)
utslib.copyright.status	open_access	*
dc.rights.license	This work is licensed under a Creative Commons Attribution 4.0 International License (CC BY 4.0). To view a copy of this license, visit https://creativecommons.org/licenses/by/4.0/
dc.date.updated	2025-02-07T04:48:50Z
pubs.issue	1
pubs.publication-status	Published
pubs.volume	33
utslib.citation.issue	1

Abstract:

OBJECTIVES: The number of colorectal cancer (CRC) survivors is increasing and current models of survivorship care are unsustainable. There is a drive to implement alternative models of care including shared care between general practitioners (GPs) and hospital-based providers. The primary objective of this study was to explore perspectives on facilitators and barriers to shared care. The secondary objective was to explore experiences of telehealth-delivered care. METHOD: Qualitative data were collected via semi-structured interviews with participants in the Shared Care for Colorectal Cancer Survivors (SCORE) randomised controlled trial. Interviews explored patient experiences of usual and shared survivorship care during the SCORE trial. In response to the COVID pandemic, participant experiences of telehealth appointments were also explored. Interviews were recorded and transcribed for thematic analysis. RESULTS: Twenty survivors of CRC were interviewed with an even number in the shared and usual care arms; 14 (70%) were male. Facilitators to shared care included: good relationships with GPs; convenience of GPs; good communication between providers; desire to reduce public health system pressures. Barriers included: poor communication between clinicians; inaccessibility of GPs; beliefs about GP capacity; and a preference for follow-up care with the hospital after positive treatment experiences. Participants also commonly expressed a preference for telehealth-based follow-up when there was no need for a clinical examination. CONCLUSIONS: This is one of few studies that have explored patient experiences with shared and telehealth-based survivorship care. Findings can guide the implementation of these models, particularly around care coordination, communication, preparation, and personalised pathways of care.

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http://hdl.handle.net/10453/185029