Women- and clinician- important outcomes and priorities regarding vasa praevia: An international qualitative study to inform development of a core outcome set

Javid, N; Donnolley, N; Kingdom, J; Dadouch, R; D'Souza, R

Women- and clinician- important outcomes and priorities regarding vasa praevia: An international qualitative study to inform development of a core outcome set

Javid, N Donnolley, N Kingdom, J Dadouch, R D'Souza, R

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Publisher:: Elsevier
Publication Type:: Journal Article
Citation:: Women and Birth, 2024, 37, (4), pp. 101614
Issue Date:: 2024-07

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Field	Value	Language
dc.contributor.author	Javid, N
dc.contributor.author	Donnolley, N
dc.contributor.author	Kingdom, J
dc.contributor.author	Dadouch, R
dc.contributor.author	D'Souza, R
dc.date.accessioned	2025-03-12T02:52:34Z
dc.date.available	2024-04-04
dc.date.available	2025-03-12T02:52:34Z
dc.date.issued	2024-07
dc.identifier.citation	Women and Birth, 2024, 37, (4), pp. 101614
dc.identifier.issn	1871-5192
dc.identifier.issn	1878-1799
dc.identifier.uri	http://hdl.handle.net/10453/185716
dc.description.abstract	BACKGROUND Many studies have reported interventions for women with vasa praevia to improve perinatal outcomes. However, which outcomes are important for women remains unclear. AIM To explore what outcomes are important for women with lived experience of vasa praevia and why, in order to inform the development of a core outcome set for studies on vasa praevia. METHODS An international qualitative study was conducted with women and clinicians. Semi-structured interviews were audio-recorded, transcribed, and analysed taking an inductive approach. FINDINGS Eighteen women and six clinicians (four obstetricians, two midwives) from the United States, United Kingdom, Canada, and Australia were interviewed. Participants identified 47 patient-important outcomes and experience measures, which were grouped under five themes baby s survival and health, mother s physical health, mother s mental and emotional health, quality of health care delivery, and resource use and cost. While survival of the baby without short- and long-term morbidity remained the main priority, other important considerations included the physical, mental, social and financial wellbeing of families, future access to antenatal screening and diagnosis, information on management options and consequences, continuity of care, clear and effective communication, peer support and the appreciation of individual variations to risk tolerance, values and resource availability. CONCLUSION We have identified patient-important outcomes and experience measures that have been directly fed into the development of a core outcome set on vasa previa. Incorporating these considerations into both clinical practice and future research studies has the potential to improve outcomes and experiences for women with vasa praevia.
dc.format	Print-Electronic
dc.language	eng
dc.publisher	Elsevier
dc.relation.ispartof	Women and Birth
dc.relation.isbasedon	10.1016/j.wombi.2024.101614
dc.rights	info:eu-repo/semantics/openAccess
dc.subject	11 Medical and Health Sciences
dc.subject.classification	Obstetrics & Reproductive Medicine
dc.subject.classification	3215 Reproductive medicine
dc.subject.classification	4204 Midwifery
dc.subject.mesh	Humans
dc.subject.mesh	Female
dc.subject.mesh	Vasa Previa
dc.subject.mesh	Qualitative Research
dc.subject.mesh	Pregnancy
dc.subject.mesh	Adult
dc.subject.mesh	Australia
dc.subject.mesh	Canada
dc.subject.mesh	Interviews as Topic
dc.subject.mesh	United Kingdom
dc.subject.mesh	United States
dc.subject.mesh	Prenatal Care
dc.subject.mesh	Mothers
dc.subject.mesh	Pregnancy Outcome
dc.subject.mesh	Outcome Assessment, Health Care
dc.subject.mesh	Humans
dc.subject.mesh	Pregnancy Outcome
dc.subject.mesh	Prenatal Care
dc.subject.mesh	Mothers
dc.subject.mesh	Pregnancy
dc.subject.mesh	Qualitative Research
dc.subject.mesh	Adult
dc.subject.mesh	Canada
dc.subject.mesh	United States
dc.subject.mesh	Australia
dc.subject.mesh	Female
dc.subject.mesh	Interviews as Topic
dc.subject.mesh	Vasa Previa
dc.subject.mesh	United Kingdom
dc.subject.mesh	Outcome Assessment, Health Care
dc.subject.mesh	Humans
dc.subject.mesh	Female
dc.subject.mesh	Vasa Previa
dc.subject.mesh	Qualitative Research
dc.subject.mesh	Pregnancy
dc.subject.mesh	Adult
dc.subject.mesh	Australia
dc.subject.mesh	Canada
dc.subject.mesh	Interviews as Topic
dc.subject.mesh	United Kingdom
dc.subject.mesh	United States
dc.subject.mesh	Prenatal Care
dc.subject.mesh	Mothers
dc.subject.mesh	Pregnancy Outcome
dc.subject.mesh	Outcome Assessment, Health Care
dc.title	Women- and clinician- important outcomes and priorities regarding vasa praevia: An international qualitative study to inform development of a core outcome set
dc.type	Journal Article
utslib.citation.volume	37
utslib.location.activity	Netherlands
utslib.for	11 Medical and Health Sciences
utslib.copyright.status	open_access	*
pubs.consider-herdc	true
dc.rights.license	This work is licensed under a Creative Commons Attribution 4.0 International License (CC BY 4.0). To view a copy of this license, visit https://creativecommons.org/licenses/by/4.0/
dc.date.updated	2025-03-12T02:52:32Z
pubs.issue	4
pubs.publication-status	Published
pubs.volume	37
utslib.citation.issue	4

Abstract:

BACKGROUND Many studies have reported interventions for women with vasa praevia to improve perinatal outcomes. However, which outcomes are important for women remains unclear. AIM To explore what outcomes are important for women with lived experience of vasa praevia and why, in order to inform the development of a core outcome set for studies on vasa praevia. METHODS An international qualitative study was conducted with women and clinicians. Semi-structured interviews were audio-recorded, transcribed, and analysed taking an inductive approach. FINDINGS Eighteen women and six clinicians (four obstetricians, two midwives) from the United States, United Kingdom, Canada, and Australia were interviewed. Participants identified 47 patient-important outcomes and experience measures, which were grouped under five themes baby s survival and health, mother s physical health, mother s mental and emotional health, quality of health care delivery, and resource use and cost. While survival of the baby without short- and long-term morbidity remained the main priority, other important considerations included the physical, mental, social and financial wellbeing of families, future access to antenatal screening and diagnosis, information on management options and consequences, continuity of care, clear and effective communication, peer support and the appreciation of individual variations to risk tolerance, values and resource availability. CONCLUSION We have identified patient-important outcomes and experience measures that have been directly fed into the development of a core outcome set on vasa previa. Incorporating these considerations into both clinical practice and future research studies has the potential to improve outcomes and experiences for women with vasa praevia.

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http://hdl.handle.net/10453/185716