Transitioning to adolescent and young adult or adult cancer survivorship care: A systematic review of contemporary guidelines and trials.
- Publisher:
- SPRINGER
- Publication Type:
- Journal Article
- Citation:
- Support Care Cancer, 2026, 34, (5), pp. 411
- Issue Date:
- 2026-04-08
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Full metadata record
| Field | Value | Language |
|---|---|---|
| dc.contributor.author |
Haywood, D |
|
| dc.contributor.author | Hammersley, J | |
| dc.contributor.author | Sansom-Daly, UM | |
| dc.contributor.author | McLoone, J | |
| dc.contributor.author | Dauer, E | |
| dc.contributor.author | Wilding, H | |
| dc.contributor.author | Hart, NH | |
| dc.contributor.author | Walwyn, T | |
| dc.date.accessioned | 2026-10-09T07:43:04Z | |
| dc.date.available | 2026-03-12 | |
| dc.date.available | 2026-10-09T07:43:04Z | |
| dc.date.issued | 2026-04-08 | |
| dc.identifier.citation | Support Care Cancer, 2026, 34, (5), pp. 411 | |
| dc.identifier.issn | 0941-4355 | |
| dc.identifier.issn | 1433-7339 | |
| dc.identifier.uri | http://hdl.handle.net/10453/197142 | |
| dc.description.abstract | BACKGROUND: Health service transitions of child, adolescent, and young adult cancer survivors between paediatric and adult cancer care services are pervasively fragmented, resulting in poor coordination, reduced satisfaction, and adverse outcomes for cancer survivors and significant others (e.g., caregivers and family members). Numerous trials and clinical guidelines have been developed to support care transitions, but their convergence, divergence, and methodological quality remain unclear. To advance clinical practice and quality research about care transitions, a synthesis of trials and guidelines on child, adolescent, and young adult care transition across age-appropriate cancer services is required to inform future research, practice, guideline, and policy development. METHODS: A systematic review (CRD420251029796) was conducted. Studies were identified from searches of six bibliographic databases, four trial registers, and grey literature. Inclusion criteria focused on clinical guidelines or trials published between January 2020 and April 2025 that addressed age-related transitional cancer care. RESULTS: A total of 3706 records were identified. After screening, 18 records met the inclusion criteria: 10 clinical guidelines, 4 completed trials, and 4 ongoing trials with registrations. While general recommendations between guidelines were consistent, they diverged in detail relating to their local contexts. Only two ongoing trials, and no completed studies, included independent control groups. CONCLUSION: Completed trials were limited and highly variable in approach, components, and outcome measures, suggesting regionally specific guidelines enhance relevance, applicability, and transition practices. Future research should develop core outcome sets for care transition trials to facilitate comparison of outcomes and should develop robust study designs, including control groups. | |
| dc.format | Electronic | |
| dc.language | eng | |
| dc.publisher | SPRINGER | |
| dc.relation | http://purl.org/au-research/grants/nhmrc/2017080 | |
| dc.relation.ispartof | Support Care Cancer | |
| dc.relation.isbasedon | 10.1007/s00520-026-10579-0 | |
| dc.rights | info:eu-repo/semantics/openAccess | |
| dc.subject | 11 Medical and Health Sciences, 17 Psychology and Cognitive Sciences | |
| dc.subject.classification | Oncology & Carcinogenesis | |
| dc.subject.classification | 32 Biomedical and clinical sciences | |
| dc.subject.classification | 42 Health sciences | |
| dc.subject.classification | 52 Psychology | |
| dc.subject.mesh | Humans | |
| dc.subject.mesh | Adolescent | |
| dc.subject.mesh | Young Adult | |
| dc.subject.mesh | Practice Guidelines as Topic | |
| dc.subject.mesh | Neoplasms | |
| dc.subject.mesh | Transition to Adult Care | |
| dc.subject.mesh | Cancer Survivors | |
| dc.subject.mesh | Adult | |
| dc.subject.mesh | Survivorship | |
| dc.subject.mesh | Clinical Trials as Topic | |
| dc.subject.mesh | Child | |
| dc.subject.mesh | Age Factors | |
| dc.subject.mesh | Humans | |
| dc.subject.mesh | Neoplasms | |
| dc.subject.mesh | Age Factors | |
| dc.subject.mesh | Adolescent | |
| dc.subject.mesh | Adult | |
| dc.subject.mesh | Child | |
| dc.subject.mesh | Clinical Trials as Topic | |
| dc.subject.mesh | Practice Guidelines as Topic | |
| dc.subject.mesh | Young Adult | |
| dc.subject.mesh | Transition to Adult Care | |
| dc.subject.mesh | Cancer Survivors | |
| dc.subject.mesh | Survivorship | |
| dc.subject.mesh | Humans | |
| dc.subject.mesh | Adolescent | |
| dc.subject.mesh | Young Adult | |
| dc.subject.mesh | Practice Guidelines as Topic | |
| dc.subject.mesh | Neoplasms | |
| dc.subject.mesh | Transition to Adult Care | |
| dc.subject.mesh | Cancer Survivors | |
| dc.subject.mesh | Adult | |
| dc.subject.mesh | Survivorship | |
| dc.subject.mesh | Clinical Trials as Topic | |
| dc.subject.mesh | Child | |
| dc.subject.mesh | Age Factors | |
| dc.title | Transitioning to adolescent and young adult or adult cancer survivorship care: A systematic review of contemporary guidelines and trials. | |
| dc.type | Journal Article | |
| utslib.citation.volume | 34 | |
| utslib.location.activity | Germany | |
| utslib.for | 11 Medical and Health Sciences | |
| utslib.for | 17 Psychology and Cognitive Sciences | |
| pubs.organisational-group | University of Technology Sydney | |
| pubs.organisational-group | University of Technology Sydney/Faculty of Health | |
| pubs.organisational-group | University of Technology Sydney/Faculty of Health/School of Human Performance, Rehab & Population Health | |
| pubs.organisational-group | University of Technology Sydney/UTS Groups | |
| pubs.organisational-group | University of Technology Sydney/UTS Groups/INSIGHT: Institute for Innovative Solutions for Wellbeing and Health | |
| pubs.organisational-group | University of Technology Sydney/UTS Groups/Human Performance Research Centre (HPRC) | |
| pubs.organisational-group | University of Technology Sydney/UTS Groups/Stroke Research Collaborative | |
| pubs.organisational-group | University of Technology Sydney/UTS Groups/Chancellor's Research Fellows | |
| pubs.organisational-group | University of Technology Sydney/UTS Groups/Early Career Academic Network | |
| pubs.organisational-group | University of Technology Sydney/Faculty of Health/School of Human Performance, Rehab & Population Health/Discipline of Exercise Physiology | |
| utslib.copyright.status | open_access | * |
| dc.rights.license | This work is licensed under a Creative Commons Attribution 4.0 International License (CC BY 4.0). To view a copy of this license, visit https://creativecommons.org/licenses/by/4.0/ | |
| dc.date.updated | 2026-10-09T07:43:03Z | |
| pubs.issue | 5 | |
| pubs.publication-status | Published online | |
| pubs.volume | 34 | |
| utslib.citation.issue | 5 |
Abstract:
BACKGROUND: Health service transitions of child, adolescent, and young adult cancer survivors between paediatric and adult cancer care services are pervasively fragmented, resulting in poor coordination, reduced satisfaction, and adverse outcomes for cancer survivors and significant others (e.g., caregivers and family members). Numerous trials and clinical guidelines have been developed to support care transitions, but their convergence, divergence, and methodological quality remain unclear. To advance clinical practice and quality research about care transitions, a synthesis of trials and guidelines on child, adolescent, and young adult care transition across age-appropriate cancer services is required to inform future research, practice, guideline, and policy development. METHODS: A systematic review (CRD420251029796) was conducted. Studies were identified from searches of six bibliographic databases, four trial registers, and grey literature. Inclusion criteria focused on clinical guidelines or trials published between January 2020 and April 2025 that addressed age-related transitional cancer care. RESULTS: A total of 3706 records were identified. After screening, 18 records met the inclusion criteria: 10 clinical guidelines, 4 completed trials, and 4 ongoing trials with registrations. While general recommendations between guidelines were consistent, they diverged in detail relating to their local contexts. Only two ongoing trials, and no completed studies, included independent control groups. CONCLUSION: Completed trials were limited and highly variable in approach, components, and outcome measures, suggesting regionally specific guidelines enhance relevance, applicability, and transition practices. Future research should develop core outcome sets for care transition trials to facilitate comparison of outcomes and should develop robust study designs, including control groups.
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