Facilitating needs based cancer care for people with a chronic disease: Evaluation of an intervention using a multi-centre interrupted time series design

Waller, A; Girgis, A; Johnson, C; Mitchell, G; Yates, P; Kristjanson, L; Tattersall, M; Lecathelinais, C; Sibbritt, D; Kelly, B; Gorton, E; Currow, D

Facilitating needs based cancer care for people with a chronic disease: Evaluation of an intervention using a multi-centre interrupted time series design

Waller, A Girgis, A Johnson, C Mitchell, G Yates, P Kristjanson, L Tattersall, M Lecathelinais, C Sibbritt, D

Kelly, B Gorton, E Currow, D

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Publication Type:: Journal Article
Citation:: BMC Palliative Care, 2010, 9
Issue Date:: 2010-02-26

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Field	Value	Language
dc.contributor.author	Waller, A	en_US
dc.contributor.author	Girgis, A	en_US
dc.contributor.author	Johnson, C	en_US
dc.contributor.author	Mitchell, G	en_US
dc.contributor.author	Yates, P	en_US
dc.contributor.author	Kristjanson, L	en_US
dc.contributor.author	Tattersall, M	en_US
dc.contributor.author	Lecathelinais, C	en_US
dc.contributor.author	Sibbritt, D https://orcid.org/0000-0003-3561-9447	en_US
dc.contributor.author	Kelly, B	en_US
dc.contributor.author	Gorton, E	en_US
dc.contributor.author	Currow, D https://orcid.org/0000-0003-1988-1250	en_US
dc.date.issued	2010-02-26	en_US
dc.identifier.citation	BMC Palliative Care, 2010, 9	en_US
dc.identifier.uri	http://hdl.handle.net/10453/22487
dc.description.abstract	Background. Palliative care should be provided according to the individual needs of the patient, caregiver and family, so that the type and level of care provided, as well as the setting in which it is delivered, are dependent on the complexity and severity of individual needs, rather than prognosis or diagnosis 1. This paper presents a study designed to assess the feasibility and efficacy of an intervention to assist in the allocation of palliative care resources according to need, within the context of a population of people with advanced cancer. Methods/design. People with advanced cancer and their caregivers completed bi-monthly telephone interviews over a period of up to 18 months to assess unmet needs, anxiety and depression, quality of life, satisfaction with care and service utilisation. The intervention, introduced after at least two baseline phone interviews, involved a) training medical, nursing and allied health professionals at each recruitment site on the use of the Palliative Care Needs Assessment Guidelines and the Needs Assessment Tool: Progressive Disease - Cancer (NAT: PD-C); b) health professionals completing the NAT: PD-C with participating patients approximately monthly for the rest of the study period. Changes in outcomes will be compared pre-and post-intervention. Discussion. The study will determine whether the routine, systematic and regular use of the Guidelines and NAT: PD-C in a range of clinical settings is a feasible and effective strategy for facilitating the timely provision of needs based care. Trials registration. ISRCTN21699701. © 2010 Waller et al; licensee BioMed Central Ltd.	en_US
dc.relation.ispartof	BMC Palliative Care	en_US
dc.relation.isbasedon	10.1186/1472-684X-9-2	en_US
dc.subject.classification	Gerontology	en_US
dc.title	Facilitating needs based cancer care for people with a chronic disease: Evaluation of an intervention using a multi-centre interrupted time series design	en_US
dc.type	Journal Article
utslib.citation.volume	9	en_US
utslib.for	1117 Public Health and Health Services	en_US
utslib.for	1110 Nursing	en_US
pubs.embargo.period	Not known	en_US
pubs.organisational-group	/University of Technology Sydney
pubs.organisational-group	/University of Technology Sydney/DVC (Teaching and Learning)
pubs.organisational-group	/University of Technology Sydney/Faculty of Health
pubs.organisational-group	/University of Technology Sydney/Faculty of Health/IMPACCT
pubs.organisational-group	/University of Technology Sydney/Strength - CHSP - Health Services and Practice
utslib.copyright.status	closed_access
pubs.publication-status	Published	en_US
pubs.volume	9	en_US

Abstract:

Background. Palliative care should be provided according to the individual needs of the patient, caregiver and family, so that the type and level of care provided, as well as the setting in which it is delivered, are dependent on the complexity and severity of individual needs, rather than prognosis or diagnosis 1. This paper presents a study designed to assess the feasibility and efficacy of an intervention to assist in the allocation of palliative care resources according to need, within the context of a population of people with advanced cancer. Methods/design. People with advanced cancer and their caregivers completed bi-monthly telephone interviews over a period of up to 18 months to assess unmet needs, anxiety and depression, quality of life, satisfaction with care and service utilisation. The intervention, introduced after at least two baseline phone interviews, involved a) training medical, nursing and allied health professionals at each recruitment site on the use of the Palliative Care Needs Assessment Guidelines and the Needs Assessment Tool: Progressive Disease - Cancer (NAT: PD-C); b) health professionals completing the NAT: PD-C with participating patients approximately monthly for the rest of the study period. Changes in outcomes will be compared pre-and post-intervention. Discussion. The study will determine whether the routine, systematic and regular use of the Guidelines and NAT: PD-C in a range of clinical settings is a feasible and effective strategy for facilitating the timely provision of needs based care. Trials registration. ISRCTN21699701. © 2010 Waller et al; licensee BioMed Central Ltd.

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http://hdl.handle.net/10453/22487