Elements of optimal paediatric palliative care for children and young people: An integrative review using a systematic approach

Virdun, C; Brown, N; Phillips, J; Luckett, T; Agar, M; Green, A; Davidson, PM

Elements of optimal paediatric palliative care for children and young people: An integrative review using a systematic approach

Virdun, C

Brown, N Phillips, J

Luckett, T

Agar, M

Green, A

Davidson, PM

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Publication Type:: Journal Article
Citation:: Collegian, 2015, 22 (4), pp. 421 - 431
Issue Date:: 2015-01-01

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Field	Value	Language
dc.contributor.author	Virdun, C https://orcid.org/0000-0003-3945-0749	en_US
dc.contributor.author	Brown, N	en_US
dc.contributor.author	Phillips, J https://orcid.org/0000-0002-3691-8230	en_US
dc.contributor.author	Luckett, T https://orcid.org/0000-0001-6121-5409	en_US
dc.contributor.author	Agar, M https://orcid.org/0000-0002-6756-6119	en_US
dc.contributor.author	Green, A https://orcid.org/0000-0002-7541-3665	en_US
dc.contributor.author	Davidson, PM https://orcid.org/0000-0003-2050-1534	en_US
dc.date.available	2020-05-25T19:05:59Z
dc.date.issued	2015-01-01	en_US
dc.identifier.citation	Collegian, 2015, 22 (4), pp. 421 - 431	en_US
dc.identifier.issn	1322-7696	en_US
dc.identifier.uri	http://hdl.handle.net/10453/34722
dc.description.abstract	© 2014 Australian College of Nursing Ltd. Background: Models of palliative care need to address the unmet needs of children, young people and families. Objective: To undertake an integrative review to identify the key elements of optimal paediatric palliative care from the perspectives of children and young people with palliative care needs and their parents. Data sources: Electronic databases including CINAHL, Medline, PsycINFO and AMED searched using combined terms for palliative care, service models and children along with reference lists of included studies. Study selection: Peer reviewed empirical studies reporting on evaluation of paediatric palliative care by children and young people with palliative care needs (0-19 years), or their families, published in English, between 2000 and 2013. The views of health professionals and grey literature were excluded. Quality appraisal completed by two researchers, consensus reached following discussion. Data extraction and synthesis: Data extracted by two researchers, entered into an electronic proforma and synthesised using a narrative approach. Results: Seven studies were identified of which two were quantitative, one was qualitative and four were mixed methods. Synthesis highlighted the need for tailored support enabling flexibility in care, with specific reference to location of care and access to psychosocial support, 24. h specialist support, respite care and sibling support. Conclusions: Paediatric palliative care should be flexible, responsive and tailored to the needs of children and their families. Robust evaluation of models of care that incorporate these elements is required to inform optimal care.	en_US
dc.relation.ispartof	Collegian	en_US
dc.relation.isbasedon	10.1016/j.colegn.2014.07.001	en_US
dc.subject.classification	Nursing	en_US
dc.subject.mesh	Humans	en_US
dc.subject.mesh	Respite Care	en_US
dc.subject.mesh	Palliative Care	en_US
dc.subject.mesh	Siblings	en_US
dc.subject.mesh	Social Support	en_US
dc.subject.mesh	Information Storage and Retrieval	en_US
dc.subject.mesh	Adolescent	en_US
dc.subject.mesh	Child	en_US
dc.title	Elements of optimal paediatric palliative care for children and young people: An integrative review using a systematic approach	en_US
dc.type	Journal Article
utslib.citation.volume	4	en_US
utslib.citation.volume	22	en_US
utslib.for	1110 Nursing	en_US
pubs.embargo.period	Not known	en_US
pubs.organisational-group	/University of Technology Sydney
pubs.organisational-group	/University of Technology Sydney/Faculty of Health
pubs.organisational-group	/University of Technology Sydney/Faculty of Health/IMPACCT
pubs.organisational-group	/University of Technology Sydney/Faculty of Health/Nursing
pubs.organisational-group	/University of Technology Sydney/Faculty of Health/Research Centres
pubs.organisational-group	/University of Technology Sydney/Strength - CHSP - Health Services and Practice
pubs.organisational-group	/University of Technology Sydney/Students
utslib.copyright.status	open_access
pubs.issue	4	en_US
pubs.publication-status	Published	en_US
pubs.volume	22	en_US

Abstract:

© 2014 Australian College of Nursing Ltd. Background: Models of palliative care need to address the unmet needs of children, young people and families. Objective: To undertake an integrative review to identify the key elements of optimal paediatric palliative care from the perspectives of children and young people with palliative care needs and their parents. Data sources: Electronic databases including CINAHL, Medline, PsycINFO and AMED searched using combined terms for palliative care, service models and children along with reference lists of included studies. Study selection: Peer reviewed empirical studies reporting on evaluation of paediatric palliative care by children and young people with palliative care needs (0-19 years), or their families, published in English, between 2000 and 2013. The views of health professionals and grey literature were excluded. Quality appraisal completed by two researchers, consensus reached following discussion. Data extraction and synthesis: Data extracted by two researchers, entered into an electronic proforma and synthesised using a narrative approach. Results: Seven studies were identified of which two were quantitative, one was qualitative and four were mixed methods. Synthesis highlighted the need for tailored support enabling flexibility in care, with specific reference to location of care and access to psychosocial support, 24. h specialist support, respite care and sibling support. Conclusions: Paediatric palliative care should be flexible, responsive and tailored to the needs of children and their families. Robust evaluation of models of care that incorporate these elements is required to inform optimal care.

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http://hdl.handle.net/10453/34722