Experiences of Iranian family caregivers supporting individuals with multiple sclerosis: a qualitative study

Ebrahimi, H; Hassankhani, H; Khodadadi, E; Namdar, H; Ferguson, C

Experiences of Iranian family caregivers supporting individuals with multiple sclerosis: a qualitative study

Ebrahimi, H Hassankhani, H Khodadadi, E Namdar, H Ferguson, C

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Publisher:: Sumathi Publications
Publication Type:: Journal Article
Citation:: International Journal of Medical Research and Health Sciences, 2016, 5 (9), pp. 174 - 182
Issue Date:: 2016-08-04

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Field	Value	Language
dc.contributor.author	Ebrahimi, H	en_US
dc.contributor.author	Hassankhani, H	en_US
dc.contributor.author	Khodadadi, E	en_US
dc.contributor.author	Namdar, H	en_US
dc.contributor.author	Ferguson, C https://orcid.org/0000-0002-2417-2216	en_US
dc.date.available	2016-07-29	en_US
dc.date.issued	2016-08-04	en_US
dc.identifier.citation	International Journal of Medical Research and Health Sciences, 2016, 5 (9), pp. 174 - 182	en_US
dc.identifier.issn	2319-5886	en_US
dc.identifier.uri	http://hdl.handle.net/10453/54842
dc.description.abstract	Family members of patients are often considered informal primary caregivers, particularly for those living with chronic diseases including multiple sclerosis (MS). Caregivers often report increased burden and stress when caring for individuals with chronic care needs. It is important to explore the caregiver experience in the context of MS. The aim of this study is to describe the experiences of family caregivers caring for individuals with Multiple Sclerosis. A purposive sampling method was utilized. A total of eighteen family member caregivers of patients with multiple sclerosis participated in this study. Data were collected through semi-structured and in-depth interviews conducted in the multiple sclerosis society and hospitals of Tabriz in Iran. Data were analyzed using qualitative content analysis assisted by MAXQDA 10 software. Three main categories emerged from interviews about their caregiving experiences. These include1) emotional reactions; 2) caregiver needs; and 3) caregiver expectations. Results of this study demonstrate that family caregivers of individuals with MS show different emotional reactions and have complex needs and expectations from other ‘non-caregiver relatives and society. This study highlights the psychosocial, physical and economic needs of caregivers of individuals with MS and enhances social understanding of this impact of the condition. This may improve the support clinicians provide to family caregivers. There is need to develop targeted interventions that reduce caregiver burden for those caring for individuals with MS.	en_US
dc.publisher	Sumathi Publications	en_US
dc.relation.ispartof	International Journal of Medical Research and Health Sciences	en_US
dc.title	Experiences of Iranian family caregivers supporting individuals with multiple sclerosis: a qualitative study	en_US
dc.type	Journal Article
utslib.citation.volume	9	en_US
utslib.citation.volume	5	en_US
utslib.for	1112 Oncology and Carcinogenesis	en_US
pubs.embargo.period	Not known	en_US
pubs.organisational-group	/University of Technology Sydney
pubs.organisational-group	/University of Technology Sydney/Faculty of Health
utslib.copyright.status	open_access
pubs.consider-herdc	true	en_US
pubs.issue	9	en_US
pubs.publication-status	Published	en_US
pubs.volume	5	en_US

Abstract:

Family members of patients are often considered informal primary caregivers, particularly for those living with chronic diseases including multiple sclerosis (MS). Caregivers often report increased burden and stress when caring for individuals with chronic care needs. It is important to explore the caregiver experience in the context of MS. The aim of this study is to describe the experiences of family caregivers caring for individuals with Multiple Sclerosis. A purposive sampling method was utilized. A total of eighteen family member caregivers of patients with multiple sclerosis participated in this study. Data were collected through semi-structured and in-depth interviews conducted in the multiple sclerosis society and hospitals of Tabriz in Iran. Data were analyzed using qualitative content analysis assisted by MAXQDA 10 software. Three main categories emerged from interviews about their caregiving experiences. These include1) emotional reactions; 2) caregiver needs; and 3) caregiver expectations. Results of this study demonstrate that family caregivers of individuals with MS show different emotional reactions and have complex needs and expectations from other ‘non-caregiver relatives and society. This study highlights the psychosocial, physical and economic needs of caregivers of individuals with MS and enhances social understanding of this impact of the condition. This may improve the support clinicians provide to family caregivers. There is need to develop targeted interventions that reduce caregiver burden for those caring for individuals with MS.

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http://hdl.handle.net/10453/54842