Are rural and remote patients, families and caregivers needs in life-limiting illness different from those of urban dwellers? A narrative synthesis of the evidence

Kirby, S; Barlow, V; Saurman, E; Lyle, D; Passey, M; Currow, D

Are rural and remote patients, families and caregivers needs in life-limiting illness different from those of urban dwellers? A narrative synthesis of the evidence

Kirby, S Barlow, V Saurman, E Lyle, D Passey, M Currow, D

Permalink

Publication Type:: Journal Article
Citation:: Australian Journal of Rural Health, 2016, 24 (5), pp. 289 - 299
Issue Date:: 2016-10-01

Closed Access

	Filename	Description	Size
	ajr12312.pdf	Published Version	89.98 kB	Adobe PDF	View/Open

Copyright Clearance Process

Recently Added
In Progress
Closed Access

This item is closed access and not available.

Full metadata record

Field	Value	Language
dc.contributor.author	Kirby, S	en_US
dc.contributor.author	Barlow, V	en_US
dc.contributor.author	Saurman, E	en_US
dc.contributor.author	Lyle, D	en_US
dc.contributor.author	Passey, M	en_US
dc.contributor.author	Currow, D https://orcid.org/0000-0003-1988-1250	en_US
dc.date.available	2016-05-23	en_US
dc.date.issued	2016-10-01	en_US
dc.identifier.citation	Australian Journal of Rural Health, 2016, 24 (5), pp. 289 - 299	en_US
dc.identifier.issn	1038-5282	en_US
dc.identifier.uri	http://hdl.handle.net/10453/88752
dc.description.abstract	© 2016 National Rural Health Alliance Inc. This review aimed to assess the evidence to answer the question whether palliative end-of-life care needs of patients and caregivers in rural and remote communities differs from those of urban dwellers. Peer-reviewed studies from 1996 to the present dealing with the experience of rural and remote patients and caregivers at the end-of-life compared with that of urban people were extracted for narrative synthesis. The eight studies included showed that palliative needs of rural and remote residents are related to context. Diagnosis and treatment are less well managed in rural areas. Rural differences include: people are more accepting of death and less likely to intervene to delay death; caregivers tend to be younger and include friends as well as family and local support networks are important. Rural and remote end-of-life needs are shaped by reduced access and availability of services which has a negative influence on outcomes. This is counterbalanced by an acceptance of death and local support networks. Well-designed longitudinal studies with samples comprised of rural and urban residents for comparison are required to monitor how end-of-life need might change with the approach of death. Clinicians, health services and policy makers need a better understanding of rural attitudes and of how rural community networks mobilise to support end-of-life care in their rural and remote communities.	en_US
dc.relation.ispartof	Australian Journal of Rural Health	en_US
dc.relation.isbasedon	10.1111/ajr.12312	en_US
dc.subject.mesh	Humans	en_US
dc.subject.mesh	Palliative Care	en_US
dc.subject.mesh	Middle Aged	en_US
dc.subject.mesh	Caregivers	en_US
dc.subject.mesh	Rural Population	en_US
dc.subject.mesh	Rural Health Services	en_US
dc.subject.mesh	Health Services Needs and Demand	en_US
dc.subject.mesh	Health Services Accessibility	en_US
dc.subject.mesh	Female	en_US
dc.subject.mesh	Male	en_US
dc.title	Are rural and remote patients, families and caregivers needs in life-limiting illness different from those of urban dwellers? A narrative synthesis of the evidence	en_US
dc.type	Journal Article
utslib.citation.volume	5	en_US
utslib.citation.volume	24	en_US
utslib.for	1604 Human Geography	en_US
utslib.for	11 Medical and Health Sciences	en_US
utslib.for	16 Studies in Human Society	en_US
pubs.embargo.period	Not known	en_US
pubs.organisational-group	/University of Technology Sydney
pubs.organisational-group	/University of Technology Sydney/Faculty of Health
pubs.organisational-group	/University of Technology Sydney/Faculty of Health/IMPACCT
utslib.copyright.status	closed_access
pubs.issue	5	en_US
pubs.publication-status	Published	en_US
pubs.volume	24	en_US

Abstract:

© 2016 National Rural Health Alliance Inc. This review aimed to assess the evidence to answer the question whether palliative end-of-life care needs of patients and caregivers in rural and remote communities differs from those of urban dwellers. Peer-reviewed studies from 1996 to the present dealing with the experience of rural and remote patients and caregivers at the end-of-life compared with that of urban people were extracted for narrative synthesis. The eight studies included showed that palliative needs of rural and remote residents are related to context. Diagnosis and treatment are less well managed in rural areas. Rural differences include: people are more accepting of death and less likely to intervene to delay death; caregivers tend to be younger and include friends as well as family and local support networks are important. Rural and remote end-of-life needs are shaped by reduced access and availability of services which has a negative influence on outcomes. This is counterbalanced by an acceptance of death and local support networks. Well-designed longitudinal studies with samples comprised of rural and urban residents for comparison are required to monitor how end-of-life need might change with the approach of death. Clinicians, health services and policy makers need a better understanding of rural attitudes and of how rural community networks mobilise to support end-of-life care in their rural and remote communities.

Please use this identifier to cite or link to this item:

http://hdl.handle.net/10453/88752