A study protocol for the australasian oncofertility registry: Monitoring referral patterns and the uptake, quality, and complications of fertility preservation strategies in Australia and New Zealand

Anazodo, AC; Stern, CJ; Mclachlan, RI; Gerstl, B; Agresta, F; Cohn, RJ; Jayasinghe, Y; Wakefield, CE; Daly, G; Chan, D; Gilbert, L; Kemertzis, M; Orme, LM; Wand, H; Viney, R; Gillam, L; Deans, R; Jetti, M; Wu, J; Chapman, M; Ledger, W; Sullivan, EA

A study protocol for the australasian oncofertility registry: Monitoring referral patterns and the uptake, quality, and complications of fertility preservation strategies in Australia and New Zealand

Anazodo, AC Stern, CJ Mclachlan, RI Gerstl, B Agresta, F Cohn, RJ Jayasinghe, Y Wakefield, CE Daly, G Chan, D Gilbert, L Kemertzis, M Orme, LM Wand, H Viney, R

Gillam, L Deans, R Jetti, M Wu, J Chapman, M Ledger, W Sullivan, EA

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Publication Type:: Journal Article
Citation:: Journal of Adolescent and Young Adult Oncology, 2016, 5 (3), pp. 215 - 225
Issue Date:: 2016-09-01

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Field	Value	Language
dc.contributor.author	Anazodo, AC	en_US
dc.contributor.author	Stern, CJ	en_US
dc.contributor.author	Mclachlan, RI	en_US
dc.contributor.author	Gerstl, B	en_US
dc.contributor.author	Agresta, F	en_US
dc.contributor.author	Cohn, RJ	en_US
dc.contributor.author	Jayasinghe, Y	en_US
dc.contributor.author	Wakefield, CE	en_US
dc.contributor.author	Daly, G	en_US
dc.contributor.author	Chan, D	en_US
dc.contributor.author	Gilbert, L	en_US
dc.contributor.author	Kemertzis, M	en_US
dc.contributor.author	Orme, LM	en_US
dc.contributor.author	Wand, H	en_US
dc.contributor.author	Viney, R https://orcid.org/0000-0002-0039-9635	en_US
dc.contributor.author	Gillam, L	en_US
dc.contributor.author	Deans, R	en_US
dc.contributor.author	Jetti, M	en_US
dc.contributor.author	Wu, J	en_US
dc.contributor.author	Chapman, M	en_US
dc.contributor.author	Ledger, W	en_US
dc.contributor.author	Sullivan, EA https://orcid.org/0000-0002-8718-2753	en_US
dc.date.issued	2016-09-01	en_US
dc.identifier.citation	Journal of Adolescent and Young Adult Oncology, 2016, 5 (3), pp. 215 - 225	en_US
dc.identifier.issn	2156-5333	en_US
dc.identifier.uri	http://hdl.handle.net/10453/98018
dc.description.abstract	© 2016, Mary Ann Liebert, Inc. Improvements in cancer diagnosis and treatment in patients of a reproductive age have led to significant improvements in survival rates; however, a patient's fertility can be affected by both cancer and its treatment. As survival rates improve, there is an expectation by clinicians and patients that patient's reproductive potential should be considered and protected as much as possible. However, there is a lack of data about current fertility preservation (FP) uptake as well as accurate data on the acute or permanent reproductive risks of cancer treatment, complications of FP in cancer patients, and the use and success of assisted reproductive technology by cancer survivors. FP remains a major gap in acute cancer management with lifelong implications for cancer survivors. The FUTuRE Fertility research team has established the first binational multisite Australasian Oncofertility Registry, which is collecting a complete oncofertility data set from cancer and fertility centers in Australia and New Zealand. Outcomes from the research study will monitor referral, uptake, and complications of FP, document patient's reproductive potential after treatment, and collect data on the use of assisted reproductive technology following cancer treatment. The data will be linked to other routine health and administrative data sets to allow for other research projects to be carried out. The changes in oncofertility care will be benchmarked against the Australasian Oncofertility Charter. The data will be used to develop evidence-based guidelines and resources, including development of accurate risk projections for patients' risk of infertility, allowing clinicians to make recommendations for FP or assisted reproductive technology.	en_US
dc.relation.ispartof	Journal of Adolescent and Young Adult Oncology	en_US
dc.relation.isbasedon	10.1089/jayao.2015.0062	en_US
dc.subject.mesh	Humans	en_US
dc.subject.mesh	Neoplasms	en_US
dc.subject.mesh	Registries	en_US
dc.subject.mesh	Fertility	en_US
dc.subject.mesh	Adolescent	en_US
dc.subject.mesh	Adult	en_US
dc.subject.mesh	Australia	en_US
dc.subject.mesh	New Zealand	en_US
dc.subject.mesh	Female	en_US
dc.subject.mesh	Male	en_US
dc.subject.mesh	Young Adult	en_US
dc.subject.mesh	Fertility Preservation	en_US
dc.title	A study protocol for the australasian oncofertility registry: Monitoring referral patterns and the uptake, quality, and complications of fertility preservation strategies in Australia and New Zealand	en_US
dc.type	Journal Article
utslib.citation.volume	3	en_US
utslib.citation.volume	5	en_US
utslib.for	111799 Public Health and Health Services not elsewhere classified	en_US
utslib.for	1110 Nursing	en_US
utslib.for	1112 Oncology and Carcinogenesis	en_US
utslib.for	1117 Public Health and Health Services	en_US
pubs.embargo.period	Not known	en_US
pubs.organisational-group	/University of Technology Sydney
pubs.organisational-group	/University of Technology Sydney/Faculty of Business
pubs.organisational-group	/University of Technology Sydney/Faculty of Health
pubs.organisational-group	/University of Technology Sydney/Faculty of Health/Public Health
pubs.organisational-group	/University of Technology Sydney/Strength - CHERE - Centre for Health Economics Research and Evaluation
utslib.copyright.status	closed_access
pubs.issue	3	en_US
pubs.publication-status	Published	en_US
pubs.volume	5	en_US

Abstract:

© 2016, Mary Ann Liebert, Inc. Improvements in cancer diagnosis and treatment in patients of a reproductive age have led to significant improvements in survival rates; however, a patient's fertility can be affected by both cancer and its treatment. As survival rates improve, there is an expectation by clinicians and patients that patient's reproductive potential should be considered and protected as much as possible. However, there is a lack of data about current fertility preservation (FP) uptake as well as accurate data on the acute or permanent reproductive risks of cancer treatment, complications of FP in cancer patients, and the use and success of assisted reproductive technology by cancer survivors. FP remains a major gap in acute cancer management with lifelong implications for cancer survivors. The FUTuRE Fertility research team has established the first binational multisite Australasian Oncofertility Registry, which is collecting a complete oncofertility data set from cancer and fertility centers in Australia and New Zealand. Outcomes from the research study will monitor referral, uptake, and complications of FP, document patient's reproductive potential after treatment, and collect data on the use of assisted reproductive technology following cancer treatment. The data will be linked to other routine health and administrative data sets to allow for other research projects to be carried out. The changes in oncofertility care will be benchmarked against the Australasian Oncofertility Charter. The data will be used to develop evidence-based guidelines and resources, including development of accurate risk projections for patients' risk of infertility, allowing clinicians to make recommendations for FP or assisted reproductive technology.

Please use this identifier to cite or link to this item:

http://hdl.handle.net/10453/98018