Utilizing the experience of consumers in consultation to develop the australasian oncofertility consortium charter

Anazodo, AC; Gerstl, B; Stern, CJ; Mclachlan, RI; Agresta, F; Jayasinghe, Y; Cohn, RJ; Wakefield, CE; Chapman, M; Ledger, W; Sullivan, EA

Utilizing the experience of consumers in consultation to develop the australasian oncofertility consortium charter

Anazodo, AC Gerstl, B Stern, CJ Mclachlan, RI Agresta, F Jayasinghe, Y Cohn, RJ Wakefield, CE Chapman, M Ledger, W Sullivan, EA

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Publication Type:: Journal Article
Citation:: Journal of Adolescent and Young Adult Oncology, 2016, 5 (3), pp. 232 - 239
Issue Date:: 2016-09-01

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Field	Value	Language
dc.contributor.author	Anazodo, AC	en_US
dc.contributor.author	Gerstl, B	en_US
dc.contributor.author	Stern, CJ	en_US
dc.contributor.author	Mclachlan, RI	en_US
dc.contributor.author	Agresta, F	en_US
dc.contributor.author	Jayasinghe, Y	en_US
dc.contributor.author	Cohn, RJ	en_US
dc.contributor.author	Wakefield, CE	en_US
dc.contributor.author	Chapman, M	en_US
dc.contributor.author	Ledger, W	en_US
dc.contributor.author	Sullivan, EA https://orcid.org/0000-0002-8718-2753	en_US
dc.date.issued	2016-09-01	en_US
dc.identifier.citation	Journal of Adolescent and Young Adult Oncology, 2016, 5 (3), pp. 232 - 239	en_US
dc.identifier.issn	2156-5333	en_US
dc.identifier.uri	http://hdl.handle.net/10453/98051
dc.description.abstract	© 2016, Mary Ann Liebert, Inc. Purpose: In Australia and New Zealand, there has not been a national systematic development of oncofertility services for cancer patients of reproductive age although many cancer and fertility centers have independently developed services. A number of barriers exist to the development of these services, including a lack of clear referral pathways, a lack of communication between clinicians and patients about fertility preservation, differences in the knowledge base of clinicians about the risk of cancer treatment causing infertility and fertility preservation options, a lack of national health insurance funding covering all aspects of fertility preservation, and storage costs and cultural, religious, and ethical barriers. The development of strategies to overcome these barriers is a high priority for oncofertility care to ensure that equitable access to the best standard of care is available for all patients. Method: The FUTuRE Fertility Research Group led a collaborative consultation process with the Australasian Oncofertility Consumer group and oncofertility specialists to explore consumers' experiences of oncofertility care. Consumers participated in qualitative focus group meetings to define and develop a model of consumer driven or informed "gold standard oncofertility care" with the aim of putting together a Charter that specifically described this. Conclusions: The finalized Australasian Oncofertility Consortium Charter documents eight key elements of gold standard oncofertility care that will be used to monitor the implementation of oncofertility services nationally, to ensure that these key elements are incorporated into standard practice over time.	en_US
dc.relation.ispartof	Journal of Adolescent and Young Adult Oncology	en_US
dc.relation.isbasedon	10.1089/jayao.2015.0056	en_US
dc.subject.mesh	Humans	en_US
dc.subject.mesh	Fertility	en_US
dc.subject.mesh	Adolescent	en_US
dc.subject.mesh	Adult	en_US
dc.subject.mesh	Middle Aged	en_US
dc.subject.mesh	Referral and Consultation	en_US
dc.subject.mesh	Australia	en_US
dc.subject.mesh	Young Adult	en_US
dc.subject.mesh	Consumer Behavior	en_US
dc.title	Utilizing the experience of consumers in consultation to develop the australasian oncofertility consortium charter	en_US
dc.type	Journal Article
utslib.citation.volume	3	en_US
utslib.citation.volume	5	en_US
utslib.for	1117 Public Health and Health Services	en_US
utslib.for	1110 Nursing	en_US
utslib.for	1112 Oncology and Carcinogenesis	en_US
pubs.embargo.period	Not known	en_US
pubs.organisational-group	/University of Technology Sydney
pubs.organisational-group	/University of Technology Sydney/Faculty of Health
pubs.organisational-group	/University of Technology Sydney/Faculty of Health/Public Health
utslib.copyright.status	closed_access
pubs.issue	3	en_US
pubs.publication-status	Published	en_US
pubs.volume	5	en_US

Abstract:

© 2016, Mary Ann Liebert, Inc. Purpose: In Australia and New Zealand, there has not been a national systematic development of oncofertility services for cancer patients of reproductive age although many cancer and fertility centers have independently developed services. A number of barriers exist to the development of these services, including a lack of clear referral pathways, a lack of communication between clinicians and patients about fertility preservation, differences in the knowledge base of clinicians about the risk of cancer treatment causing infertility and fertility preservation options, a lack of national health insurance funding covering all aspects of fertility preservation, and storage costs and cultural, religious, and ethical barriers. The development of strategies to overcome these barriers is a high priority for oncofertility care to ensure that equitable access to the best standard of care is available for all patients. Method: The FUTuRE Fertility Research Group led a collaborative consultation process with the Australasian Oncofertility Consumer group and oncofertility specialists to explore consumers' experiences of oncofertility care. Consumers participated in qualitative focus group meetings to define and develop a model of consumer driven or informed "gold standard oncofertility care" with the aim of putting together a Charter that specifically described this. Conclusions: The finalized Australasian Oncofertility Consortium Charter documents eight key elements of gold standard oncofertility care that will be used to monitor the implementation of oncofertility services nationally, to ensure that these key elements are incorporated into standard practice over time.

Please use this identifier to cite or link to this item:

http://hdl.handle.net/10453/98051